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  1. KimT

    Multiple Medical Issues

    I wasn't sure if I would post this at all. After deciding I had no idea where to post it but, for me, it feels like a rant/complaint so here it is. Since my diagnosis I've always believed that I should take good care of my general health, get some good sun each day possible, get some light...
  2. N

    Brian gained his angel wings

    At approx 1:07 this morning Brian went home to be with the Lord. DD and I were at his bedside. He went very peacefully. DS has just left not long before and came back with our call. This coming Jan 17 would have marked 39 years together. Feb 16 would have been 34 years of marriage. We...
  3. W

    Laryngospasm and atrophy

    First of all, I'd like to apologize for the post. I've tried to avoid it until now, but my worries are totally draining the focus of my life and I feel you can help me. I'm a man, I'm 28 years old and I live in Spain. Just over two months ago I started having a cough crisis that did not end at...
  4. P

    Mucus Help- Bulbar ALS

    Dear all, My mom has been having a very difficult time with mucus accumulating at the back of her throat and not being able to swallow or get it out. She uses a cough assist once a day which she hates. A suction machine helps a little but not as much as we hoped to. For medication, she takes...
  5. K

    Range of Motion Exercises-Advice Please?

    Hello, Something that's really worrying me is range of motion exercises. We went months with my 87 year old mother being bed-bound before I realized we needed to push for a PT to asses. We got a simple group of exercises last month, so that's good (I hope!). I do have some ROM exercises I...
  6. W

    Looking for a glimmer of hope

    Hello Everyone, I would like to start off with saying that I have utmost respect to all of PALS and CALS who despite the illness did not forfeit and are fighting and living each day as happy as it's possible. I have lurked the board for 2 months (read ALL stickies) now and I've decided I...
  7. J

    Numbness, muscle twitching, and no diagnosis? Read this.

    This post is for those who are currently experiencing numbness and muscle twitching and, like me, tend to automatically assume the worst case scenario. I felt compelled to write this a year and a half after first experiencing neurological issues because #1, it seems that a lot of folks who...
  8. A

    This one’s for the worriers

    Hi all, I’ve been lurking here on and off for a little over a year and have even caved and posted a few threads. I just had my third clean EMG in 12 months. There was a point shortly after the onset of my symptoms where I was convinced I had ALS. I would come home from work and basically take...
  9. S

    Absolutely devastated

    I'm just going to keep this short as I'm already 99% sure I have ALS and just want someone to confirm that my hands look like split hand syndrome. My symptoms started back in June of this year when I was pregnant with my son. I started to have random twitches all over which I still have today...
  10. Buckhorn

    Just a bit over 4 month's in S/P

    Hi all. Just checking in. Nov. 4th was the 4 month anniversary of Dave's passing. I miss him every single day, but, I will admit ....... less so as time goes by. I think of him, or of phrases he would say, or things I knew he would want to talk about, multiple times per day. I have conversations...
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