My name is Julia, I have not been diagnosed with ALS, but have had these symptoms.
In Late April I started having clumsiness and heaviness in my legs where it felt like I had elephant feet. Initially I had some numbness from my chin to my knees ( I know this is not a typical symptoms...
Hi everyone. Some background info before we start:
I am 30 year old male. I have been diagnosed in the past with:
Spina Bifida Occulta
Scoliosis (30 degree curve in Lumbar and 49 in Cervical region of spine)
Sensorimotor OCD related to swallowing and breathing
Testicular cancer which was...
I was dx with ALS last week, after much testing and an earlier diagnosis of polymyositis. I have been told my case is atypical. My first symptom was leg weakness, which began in thighs before becoming distal, and with a dx of polymyositis had been on a run of Prednisone, on which I...
This is my first post. I've read so much on this forum over the past couple of weeks, and I am impressed by the comradery, love, and professionalism here. I worry about my symptoms and am going in to see my PCP next Monday about my concern.
Here's a bit of my history: 43 year old male...
Hi everyone, I am new here, as my screen name states I have been misdiagnosed over and over. I was diagnosed with MS in 2012, but in 2013 was told I don't have it because the white spots did not multiply on the MRI...I rejoiced like you couldn't imagine, now that I have been unofficially...
I'm a 17yo male and I've had muscle twitching for about 2 months now. It's mainly in my right leg (calf, thigh, foot, buttock), but also in the left leg and randomly elsewhere (neck, abdomen, upper back, shoulders, arms, around the eyes, around the mouth etc). It started about two months ago...
My friend and mentor was was just recently diagnosed with ALS/MND. It flipped us both on ours heads. Since regaining a little footing however, we've been doing a great deal of reading and research looking for...anything to help really. We've come across some naturophathic treatments for...
Hello there everyone.
I have already asked two GPs regarding my body-wide twitches (above ear, forehead, lips, chin, chest, stomach, butt, arms & legs, feet, etc... name it they happen there) that have been persisting several times an hour everyday for several months. These twitches aren't...
My big horror story.
After seeing several muscular neurologists, I decided to get one more opinion. This time I researched the internet to find a person that had some clout in the ALS network. With help from the ALS organization and many hours I found a neurologist I thought could give me a...
Hi everyone, I've posted here before, and so far have received a unanimous "no ALS" from everyone that's commented - a good sign I believe :)
Anyway, I recently underwent a thorough neurological exam from my GP, testing balance, reflexes, babinski, etc. and there were no abnormalities at all...