On Wednesday, May 22nd, my brave and courageous mom was set free of her 2 1/2 year journey with ALS. She spent the last two weeks in the hospital with her family by her side. I spent many hours with her just holding her hand listening to her favorite artist Johnny Reid. I know she is up...
Hello, I am new to this forum. For everyone who has this disease My heart is with you all. I am concerned about something. Well I am an artist. I work with oil paintings (it has fumes) . I used to paint and enjoy it before I got sick. On July I got mono with Epstein Barr. The weird thing is that...
Just watched a TED talk about a device that allowed an artist paralyzed by ALS to draw for the first time in seven years. Made my heart happy to watch it.
Mick Ebeling: The invention that unlocked a locked-in artist | Video on TED.com
A British artist, Susan Austin, had her wheelchair modified to make it submersible and able to float. This video shows her basically scuba diving in it. It's beautiful to watch.
British Artist Creates Submersible Wheelchair She Can Pilot Underwater
I was just contacted by phone by a man named Martin (Marty) Murray. He intimated that he was a local person who was looking to contact others in the area with ALS and said he'd seen the recent article about my husband in our local paper. It turns out that he is a scam artist, living down by...
Hello,
I don't mean to take away from the more important discussions on this forum, but I thought someone here might be able to let me know whether they have seen this before?
I'm 27 years old, a physical theatre actor, working in acrobatics, mime, etc.
I've had very random symptoms occurring...
age
artist
atrophy
back
bfs
brain
clinical
depression
diagnosis
drugs
emg
fasciculations
fear
hip
hope
information
mri
muscle
muscle weakness
muscles
neurologist
pain
research
symptoms
tests
weakness
wrist
wrong
My name is Blair Polischuk. I am a Canadian artist living with ALS. I have just release a free e-book of my life’s work entitled "Archetypes"
Please join me on my Facebook page, Blair Polischuk Artist | Facebook
share my free e-book with all you know, and help me in my quest to raise awareness...
Despite his disability of being wheelchair-bound with ALS, Lee has managed to create music using a unique, painstaking method. Utilizing a computer and music notation software he is able to compose using one finger and a touch pad. Lee is no longer able to sing because of diminished lung...
Haven't seen this guy mentioned recently, but he is still at it. He tracked down my phone number and called my house based on an article in the paper I was in. Please be aware.
http://www.quackwatch.org/06ResearchProjects/als/murray.pdf