arm

Hello everyone! This ended up being a very long post so I I'm going to put a tldr at the end for those of you with limited energy. This is my first post here and as a c9 carrier I will likely be lurking around for a while as it is the most comfort I have found so far. I want to say thank you...

Until last night I have been able to get out of bed to use a potty bucket. Last night I had to call my wife 2 times to get me up. I was able to get up a couple of times myself? I get up my using right arm an swing legs over side of bed. I don’t even want to go to bed tonight. I am a 77 YO...

Left arm is nearly useless and right arm weakening. Need to put something in place for communication. I understand APPLE has something in place with their latest IOS devices and associated cameras. Has anyone tried these? What do you and/or your PALS have experience with? Recommendations and...

Hello everyone. I have been driving myself crazy the last few weeks. It seems like over the last couple months I was experiencing some pain in my right knee. Not all the time, nothing major. Fast forward til about 2 weeks ago. I started having some rib pain on my left side, then knee pain on my...

Hello all, My father was first diagnosed with lower motor neuron ALS roughly one year ago. He got the official diagnosis in September 2018 when they were finally certain that it was not CIDP. Within the week my Dad was diagnosed, I accepted my first job out of graduate school and moved 2 and a...

I need your help even if I know it's a little out of place. I am French so sorry for mistakes. Here is my story, I went to the Caribbean in July 2017 and I went back in August 2017. When I returned to Paris, I had a fever for no reason and she left in a week. I started having burns in the body...

Hello ALS Community, Thank you for taking the time to read my post. I am curious if this description resonates with any of you: I am in the process of being worked up for possible ALS (EMG study in a week). My neurologist is suspicious of ALS, but is also considering other possible causes of...

I am a 28 year old white male. After playing basketball 5 months ago, I developed severe pain in between my traps (more towards the right), and it hurt to turn my head to the right. Shortly thereafter, I developed numbness in my index and middle finger (aware these aren't ALS symptoms, but bare...

Hi Megan. All my life I’ve been pretty healthy and pretty happy but the last two months have have some health issues but I don’t have any answers to. As a new I’m Fearing the worst. My symptoms or arm weakness that sort of comes and goes so I’m sure that’s from anxiety, my right leg just...

36 y/o male with 1 grandparent diagnosed with ALS (at 73) and died at 75. 2.5 months ago had twitching every ~8 seconds in right arm. After a week it moved throughout body but was primarily in right arm. It went away for 2 weeks, then came back primarily in right arm and left calf (and...