Hi all,
First of all I would like to say sorry for posting this in here. Just don’t have many people to talk to and would like some helpful information.
I am a 21 year old female. My mother was diagnosed with ALS in 2013 she was 52 years old. I was mums primary caregiver. It all started in...
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Just rambling. Today was 3 weeks since Ferd died. I've been trying to get the thank you cards done and have been in tears all weekend. I got the online stuff finished but the cards are still waiting, Not sure what it is about them that is so hard but... Getting his things together and doing the...
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Hello everyone, I would like to start of by saying that I’m sorry to everyone here and that I have read the stickies but I continue to scare myself into thinking that I may have this sinister disease.
For me everything started about six months ago now with symptoms that wouldn’t have led me in...
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I don't really know how to describe it but the toes on one of my foot feel very different. When I walk it feels like my toes are curled up, however it does not look like they actually are curled. When I try to flex or move my toes on that foot I notice they don't move as smoothly or as well as...
Hello everyone, I am a 19 years old High school student and last year was a total nightmare for me and now it continues. I do not know what is happening with me but it scares the hell out of me. So I hope you can help me to understand these symptoms and help me maybe because i am desperate, docs...
First of all, hello to all of you guys.
Well for about 3 month i have been having twitches all over my body without any cramps, but today i noticed something in pright pinky when i try to extend it, it slowly goes down like it didn't have any strength at all, also i tried making the heavy metal...
Hey everyone. Thank you for taking the time to read my post, I am so truly sorry to the people that have to live with this horrible disease. I am a 23-year old male, caucasian.
About four days ago I noticed uncontrollable twitching in my left leg as I was going to sleep. Twitching isn't a new...
Dear,
currently I am quite a bit worried. About one year ago I had a brain zap in my head and afterwards I had fascisculations everywhere in body which steadily became more intense.
My thumb was acting very weird, when I was using it or using with a slight force it was 'bouncing' back or...
First, I want to thank all the contributors to this forum especially PALS/CALS. I do recognize that your time is valuable. Yet, you devote so much time to helping others (a large percentage of people that don't have anything that remotely resembles ALS) which is truly remarkable.
About 10...
My dad was diagnosed with ALS a year ago, he has respiratory onset.
Although he uses a NIPPV up to 20 hours a day and needs a motorised wheelchair for anything longer than a few steps he's actually doing ok considering the prognosis last year, a year later he still can eat and drink what he...