ankle

  1. A

    My story

    Hi all. Here's my story. Please let me know what you think. Thanks in advance. I am 55 female. Started having finger, hand, and toe cramping at least 17 years ago. I also had body wide twitching. Was worried cuz I was due to have a kidney transplant surgery with general anesthesia and was...
  2. P

    Concerned about ALS

    Good Afternoon, I have spent plenty of time reading on this board and trying to find answers to all the questions that I have. A lot of my questions have been answered, but I still have a few doubts. I am hoping that you guys can help me answer some of those. I have been experiencing symptoms...
  3. S

    Anxiety? ALS? Long read, sorry!

    First, let me preface this by saying I am 100% a hypochondriac. I constantly think something is wrong with me and even if someone says something jokingly to me (which is how this whole ALS suspicion started) I freak out about it. To be honest, I haven't seen my doctor about these issues yet as...
  4. P

    Scared and sad...

    First off, thanks to everyone on these forums. I have been visiting a bit as I'm quite convinced my girlfriend of 10 years has developed this terrible disease. A year ago today we were on our snowmobiles in northern Maine... it seems impossible that we are where we are right now. Sharon...
  5. P

    Symptoms need further exploring?

    So I've had a slew of variety of symptoms over the years first being on and off all over muscle twitching. The started about two years ago and subsided probably in a matter of a couple of days. Always seems to come and go. I was just seeing by to neurologist for headaches and some other...
  6. K

    Range of Motion Exercises-Advice Please?

    Hello, Something that's really worrying me is range of motion exercises. We went months with my 87 year old mother being bed-bound before I realized we needed to push for a PT to asses. We got a simple group of exercises last month, so that's good (I hope!). I do have some ROM exercises I...
  7. V

    Drop foot query

    Dear All As some of you know, I lost my Dad to ALS four years ago in August 2014 and have struggled with both grief and health anxiety as a result. The health anxiety was terrible after my Dad passed, and it manifested itself in lots of "twitching" which was diagnosed as BFS from...
  8. B

    Knee-Ankle-Foot (KAFO) Orthotics

    Has anyone out there been prescribed these? If so, what is or has been your experience with them? Do they help or are they too cumbersome? I currently have AFOs, but the therapist says I should consider the KAFOs due to weakness/instability in my upper legs.
  9. W

    Gen-fi

    Just a quick update. My husband joined the Gen-fi study and has been for his first round of tests . He also had an EMG as he has C9orf72 .This showed mild changes to the left lunar sensory nerve and some change with his left ankle. They said it's not concerning. Does this mean we can relax and...
  10. M

    Husband is at a low risk for ALS

    My husband started out with a weird sensation in the middle of his back with mild pain starting around August. He also started to get numbness and tingling all down the left side of his body. He had 3 MRI’s done and there weren’t any lesions (he was being tested for MS) but did show a very small...
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