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  1. J

    This beast is killing my brother

    I don't write here much but am one that feels like I wouldn't be able to mentally get through this horrible progression of ALS without the people here. Mike is 47. He's my little brother, single with 2 young kids. I happen to be single with 2 grown children and live nearby so I am his main...
  2. Lkaibel

    I Can't Reconcile Myself to This...

    Yet, what choice do I actually have. Brian was diagnosed 6 months ago. He has a weaker left hand and has progressed to using a cane, mostly to to strength and balance issues with his left leg. Lately, I just can't stand it. I wound up crying in my bosses office just mentioning that my husband...
  3. T

    Just diagnosed and scared

    Hi, I'm 27 and was diagnosed with MND last Tuesday. This last week's been a storm of tears, fear, anger and 'I must be strong'. My aim in life has always been to get a good job, house, car and then have a family. I bought my own house in May this year and landed an amazing new job last...
  4. L

    Understanding progression

    Hi all again, (sorry if repetitive in nature)As a CALS trying to get a handle on timelines of progression. I was wondering if I could get your best guess. My PALS was first diagnosed in June 2014 and only had dexterity issues in his left hand. Flash forward 2 years later, this June 2016, his...
  5. M

    Missing my mom

    I just need to rant here tonight because it has been a crazy tough week at our house. Along with physical changes my mom's personality seems to have taken a drastic change. I know anger is a part of dealing with this disease and potential FTD. She seems unrecognizable to us now and has been...
  6. scaredwifetx

    The greatest gift we can give our PALS

    Today was one of the good days and at the end of the day... I realized... the reason it was so grand. Steve was tickled, happy and talked to me like he used to before ALS came into our lives. Why did he choose today when there was nothing special going on? It was because I was my pre-ALS self...
  7. S

    Feeling helpless

    Hello, I've been following this forum for quite some time but have never had the time to share. my husband was diagnosed with ftd 2014 ALS june 2015. As of this morning he refuses any help with breathing issues..no oxygen no BiPAP no doctor visits no showering it's been almost 5 days again...
  8. scaredwifetx

    The warning long post- ongoing struggle with grief and exhaustion

    I have tried posting this thread several times over the past couple of weeks but just could not muster the strength to do it. Everyone here has so many issues that burdening anyone with reading mine adds to more guilt I have been struggling with so many feelings of grief, guilt, despair and...
  9. JennyC

    Anger

    How do you deal with your PALS anger? Mom is very snappy today and of course I understand why, it just seems no matter what I do or so she gets snippy. Do I keep trying? Do I back off for a bit? Do I suck it up?
  10. H

    Still Worried

    Hello, I've posted twice previously with some scary symptoms that I've been experiencing since June 2015. I'm a 34 year old male. I haven't had a day in the past 11 months where I'm not experiencing one or multiple of the following symptoms daily (sometimes all the symptoms throughout a given...
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