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Hi everybody; My husband Stephane has decided that he is totally burned out and that he no longer loves me. So when and if I can find the necessary staff for 24 hour nursing care, until such time Stephane will stay and assist in my care; otherwise I will have to be admitted to a LTC facility...

Hi everyone, I am happy to report to you all that the Hospice nurse we HAD is NO LONGER..... :) Enough was enough. The last time she was out to Mom and Dads I felt way too much anger. She for the last time treated us with rudeness and I left the room. I went in by Dad and said "I'm sorry Dad...

Hello to all, Sometimes I feel like dad and I are the only ones dealing with this. Then I will escape to my basement to see if there is any new post, just to kinda reassure myself we are not. So, a big thank you to all who share your thoughts, anger, confusion, tears, laughter, kind words and...

Hi , my name is Stacey and I met my fiance where I used to work as they fired me do to my relationship with my fiance which was actually allowed but my personal boss found a reason to fire me and then gave me her personal opinion on how much our relationship discusted her. My fiance has ALS and...

i am new at this site. my dad was diagnosis in 10/04. i can not explain my anger or saddiness, just like everybody else who has find out there love one has als. he did retire from his job on 1-1-05 due to he is a computer programer and can not use his right arm at all. that was the reason he...

Hey Guys. Just checking in with you guys to see how things are going. Life here is getting more difficult by the day. It seems to be moving very quickly now. The first 6 years were difficult, but this past few months have been of rapid pace. His speeck is so weak and low now, and I know...

My name is karen and i'm 28 years old and i have been touched by A.L.S. in so many ways. The first time was a woman named Sue Rodriguez and her story, that same year i was pregnant with my son and was writing a essay on it for school. It touched me deeply, on my 18 birthday she died. I felt...

Hi and welcome to our Canadian site, ALS has no borders or boundaries this disease seems to be non judgemental in how it attacks the victims and their families. The pain of seeing your loved one disolve from a once healthy vibrant human to a shell of their former self robbing them of their...

Hi, I'm from portugal and my daughter has ALS Dear All, I am new on this site. I am not canadian. I live in Portugal and i am the daughter of an ALS patient diagnosed in December'02. In Portugal we don't have any association or help regarding this specific disease. Nobody knows about ALS and...