We just finished a fun, but very tiring, vacation. I always wanted to take my wife to Yosemite, I wish it didn't take ALS to get us there, but it did, finally. My sister and her family joined us, our kids and grandkids for a terrific trip. It can be a challenge to do what each of 17 people want...
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Hi all and I just want to thank everyone for their help over the 7 months that Ron was failing.
Just to let you all know that Ron passed away May 26th just after noon. He was in a coma for about two days and just passed away with no pain, no fear --- just like they say. I knew it was coming by...
February 28, 2015 at 2am my mom lost the battle to ALS and heaven gained an angel. I feel completely broken. My mom was 56 and was diagnosed in 2012. I miss her everyday. The only thing I know is that she is no longer suffering. I know its selfish to wish she was still here because I know she...
So sad to tell you all my hunny is finally at peace..... He got his wings at 2:00 this morning, Jan21 , 2015.
Thank you all for your love and support. He passed on his own terms, we didn't have to start heavy meds, just passed peacefully in his sleep...
I love you all, and will check in when I can.
I wanted to rant but after I typed it out I kept thinking of all I have to be thankful for and what an angel my PALS is. And she never gives in to ranting. So I guess that now my rant is that this disease sucks and I need to man up. "Ain't got time to bleed." (Movie reference)
I promised a eulogy. But found that sharing Elaine’s life is what we all have been doing. Going back, reading all her posts and thread contributions was a renewed education in how I would like to be. Not just thought of, but really ‘be’.
Here, instead of a eulogy, I share some of Elaine’s...
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My amazing, beautiful mother got her angel wings on May 28, 2010 at the young age of 59. She was diagnosed with Bulbar ALS on November 17 , 2009 and she lost her fight just 6 months later. I cared for her the best I could without knowing anything about this disease. I was so scared of losing my...
I can not find words for there is none that can describe what happened and how it affected so many . All memories, all smiles and laughs .
Helene was not just a mother , she was also a friend , colleague and wife. She believed in goodness, that there was something good in everyone no matter what...
My darling mum lost the battle with als/MND today, almost 5 years to the day since her diagnosis. She was 55 years old. I still feel that the suffering and pain that she went through was not the full story... So much she held apart from us, to protect us, she was still a mother to the very end...
My eyes are swollen from crying off and on since 2:00 this afternoon when my dad came over to tell me the news that his issues are caused by ALS and not his back problems.
I am absolutely devastated, he is 66 and has been having issues since summer time.. leg issues that have progressed to...