alsa

  1. F

    Revised Diagnosis

    Good morning, all! Aside from a quick "Happy Birthday" message to Max a few months ago, the last post I recall is from when I received my "working diagnosis" of PLS in March of 2015. I have had continued follow-up with the Director of our local ALSA Clinic, including a repeat EMG in December...
  2. Lilacs53

    A interview

    Good morning everyone :) I did a 45 minute phone interview this last Wednesday on ALS. I will be getting paid a $100 for it, but would have done it for nothing. The young man that interviewed me was very professional but yet compassionate. All I had to do was tell my story about how ALS has...
  3. KimT

    Things you'd like to say to people, professionals, and relatives about ALS

    As I posted a lengthy informative status on FB today is was mainly to inform distant friends and family of my diagnosis and let them know about ALSA. I was trying to be informative but couldn't help posting some of the things that hurt me along the way. Things like being called "the ALS" at a...
  4. mpnatx

    ALS emerency alert card

    This is a link to an ALS emergency alert ID card that can be printed. Marty http://www.alsa.org/assets/pdfs/fyi/fyi_idcard.pdf
  5. T

    Qualifying for Disability

    Good morning, I am new to this group; and haven't spent a ton of time because the reading makes me want to hide! I was diagnosed with bulbar onset ALS in June of 2015. At the time I was dealing with slurred speech and swallowing probkems. Now, 8 months later, I cannot speak, soft foods only...
  6. H

    We were gifted a Lift Chair today ❤️

    My mom told me this week that she can't get up from chairs anymore. I was REALLY hoping to avoid any "big" equipment until she moves in with us in about 3 weeks, but the ALS apparently isn't fond of my schedule. Anyway, our local ALSA loan closet has two lift chairs coming in, which we were...
  7. S

    Introducing myself

    Greetings. Since I’ve benefitted from reading through these forums for some time now I thought I should introduce myself and try to make some contributions of my own over time. I’m a retired academic librarian and 69 year old husband (our 47th wedding anniversary is next week) and was diagnosed...
  8. Janis J

    greetings from long-time lurker

    Hi, I've finally joined after lurking for a few months to get lots of useful information and inspiration. My husband Douglas was diagnosed with ALS in May 2015. His arms and hands were affected first and are now mostly useless. He's now having trouble swallowing and talking and had a PEG tube...
  9. D

    New member

    Hello everyone, I began having weakness in my hands about 3 years ago; noticed first when I had difficulty sliding the slide on my 45 semiautomatic Smith and Wesson. Cramping began about 2 years ago. Fasiculations began in April 2014. Weakness and muscle wasting in hands got worse and by January...
  10. Nikki J

    Found a new blog today

    I have just started reading it but so far I like her attitude! ALS and Wellness Blog
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