als

  1. Doglady

    Bacteria and Fungi Link to ALS Patients

    https://alsnewstoday.com/2019/03/20/bacteria-fungi-central-nervous-system-als-patients/ https://www.frontiersin.org/articles/10.3389/fnins.2019.00171/full My daughter just forwarded this to me. Of course she would like to think this is hopeful. So, I am wondering what others may think about...
  2. K

    Drastic change in breathing

    Hi everyone. My dad was diagnosed March 2018 with ALS. He has limb onset. His breathing, swallowing and talking have not been affected as of yet. ... so we thought. Today he had a breathing test. His score is December 2018 was 92 and today it was in the low 60s. That seems like a drastic change...
  3. N

    Could this be ALS?

    Good evening. After reading the stickies, I am still left with some questions. Here’s where I am at— 1. I have had body-wide twitching for about 6 weeks. It seems to be mostly in my legs now, with some in my face , back, and arms (not often). The twitching occurs on both sides. Some days...
  4. C

    update on me

    Hi everyone, I haven't posted in a while and thought I would come on and give you a life update. Things had been going really well for me and my family. I went back to school for my Masters in Education and in general starting taking care of myself. Well long story short, I went in for my...
  5. Y

    19 months twitchs :-(

    Previous thread Hello everyone, I'm really sorry to see you with my concerns. I read the post it but I am not reassuring. I'm 35 years old and I have fasciculations for 19 months, I do not think I have weakness but I'm afraid of having als because it does not share part. I have twitchs every...
  6. G

    Father had Als concerned I do too

    Hello everyone, just want to say I am a firm believer of Jesus. So my symptoms started as having a hard time taking a deep breath and gasping for air. I went to the ER they took a chest xray and said it was asthma, they prescribed me a 6 day supply of steroids and sent me on my way. I took the...
  7. E

    Strange symptoms

    I want to preface my first post here to say that my concern has led me to investigate about ALS in a way that makes me feel a deep sympathy for everyone affected by ALS (whether in his/her own flesh, or through a family member.) I also want to help those who make this forum possible. I will...
  8. chally

    Chally Erb flies free

    Chally’s spirit left his body as he slept in the early morning hours of Wednesday April 3rd. He continued to live his life to the fullest despite ALS wrecking his body bit by bit. This forum and all of you were so important to him. He talked about this community of friends every day. He was...
  9. A

    Just a little concerned

    Hi there everyone, I'm a little bit nervous to post this, naturally, and do want to say I hope I'm not upsetting anyone in doing so. The people on here seem absolutely amazing and I'd be appreciative of anyone to give me their personal opinion on this. Thank you so much in advance. Most...
  10. ShiftKicker

    For Canadians interested in Radicava

    The CADTH (independent advisory body Health Canada consulted with) has published its recommendations on Edaravone use in Canada based on their research and consultations with ALS patients, caregivers and other health professionals. From ALS Canada The report can be found here...
Top