als

  1. B

    MIL Diagnosed

    My MIL started showing symptoms in June 2018. It started with back pain and slurred speech and progressed from there. In August she needed a cane to walk, and by September a walker. We had began seeking answers from her PCP and a Neurologist who couldn't give us any answers. The only thing...
  2. K

    Laryngospasm, Suddenly Can't Breath: Information Videos/ Straw Breathing Technique

    Hello all, After a hairy morning of my mother's sudden and repeated laryngospasms, I found these two short videos online, which explains the causes, and a technique to deal with it and how that works. "Just" relaxing helped, however, I'm looking forward to introducing straw breathing technique...
  3. P

    Girlfriend diagnosed yesterday...

    I've known in my heart that this was als. 1 year ago she and I were snowmobiling. Symptoms first started around June. She needs help getting into my truck now, has slurred speech. And can not swallow a pill, but she can't open the pill bottle anyhow. We are referred to mass general. I...
  4. A

    Hand pain, worried maybe atrophy, and some other symtpoms

    Hello, I have not posted in a very long time. I have had muscle twitching since January 2016 and have experienced a lot of fear about my symptoms being ALS. My twitching is not bodywide and the twitches are very strong, larger twitches than they used to be. My biggest concern is that I...
  5. F

    Need help with some symptoms

    Hi everyone! First I wanted to say a huge thank you for these forums and the time you put up with a lot of people with symptoms that are in need of help. That said, now to my condition: My name is Felipe I'm a 30 M who lives in Brazil. I've started with a fasciculation outbreak on my whole...
  6. Doglady

    HERV-K suppression study

    Wondering what others may think of the idea of Human Retro Viruses being thought to be a cause of ALS and use of HIV drugs to treat PALS? Info on the study: https://www.ninds.nih.gov/Disorders/Clinical-Trials/HERV-K-Suppression-Using-Antiretroviral-Therapy-Volunteers-Amyotrophic The clinical...
Top