als

Hi All, My dad was officially diagnosed with als in March 2018 although he was exhibiting signs as early as May 2017. I remember going to the neurologist for the diagnosis and my dad walked there. Slowly but he walked. Now he can barely walk in a walker. His left side is much stronger than his...

Does Twitching in ALS stop on moving the muscle involved or it happens irrespective of the state muscle is in i.e in motion or in rest/relaxed position ? Also, do you retain the sensation when your muscle twitches during the course of the disease or your body loses the sensation to feel the...

Hello everyone, I wanted to introduce myself ... My name is Natascha, I am 41 years old and mother of two children. In 12/2000 ALS was diagnosed. Since the course at I am very slow, I am the second opinion in 04/2018 in another ALS special clinic. Unfortunately, the ALS was also confirmed there...

Just wanted to share some recent entries. Y'all are my audience. https://standup2als.com/anger-management/

Background: I've seen PCP, I've Seen a Neurologist. I have been prescribed a blood test, and EEG and an EMG. The EMG is sort of on hold right now because we are having trouble finding a place that accepts my insurance. I presented to the ER 3 days after Christmas with a pain in my head and...

Hi everyone, I am sorry to be a bother.. I am very worried.. I have been twitching body wide now for about 6 months. I noticed that I have this flicker in one spot of my tongue which looks like a twitch... of course I went to good ole google for videos and I see that that flicker could be a...

Good evening from South Africa Firstly, tremendous sympathies and all the strength in the world to all of those suffering from ALS. I guess I may be one of those hypochondriacs that I'm sure you guys all roll your eyes at! :lol: I am going for my first ever EMG tomorrow morning and can't...

Earlier this year i ended up in the hospital with rhabdomyolisis brought on by a very underactive thyroid. Well ever since then i have felt like crap. Tinnitus, fatigue, unbalanced feeling and some other issues. Some days worse than others. This jas been going on since june 2018. On christmas...

Hello all and thank you in advance. My name is Mike. I'm 25 years old, turning 26 next month. Surprisingly, in the face of what I wholeheartedly believe is an onset of ALS, I'm doing an okay job of trying to stay calm, but still very worried. I've always had an odd anatomy. God gave me a bit...

(Sorry i first posted it by error in the general feed) Hello everyone, first of all thank you for everyone contributing to this forum because I find it quite helpful to read about individual experiences. I am writing here as I have been experiencing different health problems for a while...