als

  1. R

    Newly diagnosed with MND/probably ALS but have questions

    Hi there – I am a 53 year old female and was recently diagnosed with MND, probably ALS, after two abnormal EMG’s in December. I have had blood work for the usual things (all negative) and MRI’s for the spine and brain (also negative). My only presenting functional issue is weakness in my...
  2. T

    Dad Dancing Again in Heaven

    My Dad slipped away peacefully on Wednesday, Jan. 30. ALS took his ability to move, to swallow, to speak, and finally to breathe, but it didn't take his joy or his strong faith. Diagnosis was the end of December 2017, though he'd had symptoms for at least two years prior. Possibly...
  3. R

    Terrified Bulbar or Limb Onset? Varying Symptoms

    Hello, I've been reading this forum for a few weeks now and I've held back from posting my symptoms but it seems to be progressing so I'm more anxious. I'm 28 year old male and I'm extremely worried that I might have early symptoms of Bulbar or Limb onset ALS. It all started about 7 months ago...
  4. D

    Strange symptoms

    Hi guys, I hope everyone is doing okay today. Since last September I have had extremely strange symptoms which have progressed. At the end of September 2018 I had a sudden onset of left muscle weakness and left arm muscle weakness. It wasn't gradual just happened one day. There was no less of...
  5. M

    Questiion about EMG

    Hello to everyone there fighting dificult times. I Am a 46 year old woman from Spain Who has some symptoms and has some doubts about if these could be of ALS. I Will try to tell you my story short so as not to bother you with boring details. In September 2017 I started having pain and...
  6. A

    Please help.I need a opion at least!!

    Hello everyone, and sorry for my thread.It took me while to get the nerve to post here because i really think the best of you wonderfull people, but i am very freaked out. It all started 2 months ago when i got some fasciculation on my right upper leg.Since than, i started to have widebody...
  7. I

    Changing out G tube

    I have an appointment at UCSF on Friday to change our the feeding tube since it is bleeding little at the stoma. I have not had a single day of a problem with the feeding. They set this at 1:00 and I was to see the neurologist at the ALS clinic right after. Got a call this morning from...
  8. G

    Daignosed w. ALS, Then PLS

    Curiously two different Dr. looked at same EMG and came to a different conclusion. Any thoughts? (diagnosed with ALS, Dec. 24, 2018, diagnosed w. PLS 1/17/19)
  9. C

    Follow up, same symptoms and test results. Upcoming EMG

    Hello i posted on here a few weeks ago and since then i saw a neurologist regarding my concerning symptoms, would post in my old thread but its closed and i was wondering if i could ask some questions. Since my last post, the weakness (I will say perceived weakness for the time being as the...
  10. JimInVA

    Shifting Sands...

    Our journey began at a Joe Bonamassa concert in November of 2012. With no advance warning, Darcey was suddenly having difficulty walking. Later that same night, she'd be unable to rise from a seated position. It was the beginning of a life phase that neither of us anticipated. For all of...
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