als research

  1. S

    getting frustrated

    Hello, I have preliminary diagnosis of PLS and am in the ALS research study in Miami. I am taking focalin to stay awake during the day and it has been increased several times, just recently to 15mg 2x daily but I feel nothing. I am still fall asleep during the day and feel exhausted. It's...
  2. Atsugi

    Increased funding for ALS research

    I received this today: Dear Michael, Thanks to your efforts and those of thousands of other ALS advocates, Congress has taken significant action during the past month to support the fight against ALS. The updates below reflect the power of your advocacy and demonstrate that the ALS...
    • Atsugi
    • Thread
    • advocacy age als als registry als research eye fda health increase power research senate speech support treatments
    • Replies: 3
    • Forum: Research and trials
  3. B

    Robert Morse

    I wasn't sure if I should post this under ALS research or where but I don't think it qualifies as "research". If there is anyone out there who has done any research on Robert Morse's fruit diet and herbal supplements as well as his claims to be able to successfully treat all forms of...
  4. MaxEidswick

    your advocacy

    Dear Max, Thanks to your advocacy throughout the year, this week the House of Representatives has advanced legislation to help find a treatment for ALS and to improve the lives of people living with the disease. An update on the latest activity is below. The action taken by Members of...
  5. E

    Google's outrageous description

    I'm on another ALS group on the internet and this came to our attention. Here is a picture.... If you google "What is ALS", this is what comes up. They declare it is a MANAGEABLE DISEASE, and treatment can help! Who are these morons at google? There is an option to respond if you feel so...
    • ECpara
    • Thread
    • als als research als? alsa awareness brain breathing clinic cure death diagnosed free help! hope ice bucket challenge info life money motor neuron disease neurology stroke swallowing tests toxins treatment weakness
    • Replies: 27
    • Forum: General discussion about ALS/MND
  6. S

    30 years old, female, scared of ALS... long post

    Hello all. I appreciate anyone who is taking the time to read this. I initially noticed something was wrong about 2.5 years ago. It started with strange anxiety.. heart palpitations and extreme fear that seemed to come out for no reason. I then noticed body wide twitching. This then followed...
    • Scared321
    • Thread
    • als als research ankle anxiety atrophy back emg eye fatigue fear female foot headaches health heart mri neurologist pain progression research scared scared of als symptoms testing twitching vision wanted weakness work wrong
    • Replies: 13
    • Forum: Could this be ALS?
  7. Nikki J

    A way to donate to the cause without costing you money

    I think I have mentioned this before but for newbies. Many of us shop at amazon If you go to smile.amazon.com and sign up and pick a charity ( I chose an ALS research organization as that is dear to my heart as you all know) going forward IF you shop through that site ( and it is identical to...
  8. Graybeard

    In the News

    Augie Nieto, who's made a fortune with his Lifecycle exercise machines, has been suffering from ALS for ten years. Although vented, he walked his youngest daughter down the aisle. They say he has raised over $100 Million for ALS research. Augie Nieto « CBS Los Angeles Also, CNN's Sanjay...
  9. lgelb

    RIP, dear Larry

    Larry left us peacefully this morning, after five years of ALS and a lifetime with Marfan syndrome. His brain, spinal cord and other tissue have been donated to ALS research via the National Rare Disease Interchange (NDRI), which procures donations across the US. Larry talked, ate and responded...
    • lgelb
    • Thread
    • als als research bipap book brain caregiver donations eyes friend hospice life lung capacity medical morphine research work
    • Replies: 27
    • Forum: In memory of
  10. F

    Initial Commitment of $21.7 Million from Ice Bucket Challenge

    The ALS Association Announces Initial Commitment of $21.7 Million from Ice Bucket Challenge Donations to Expedite Search for Treatments and a Cure for ALS Additional $12.5 Million in Matching Gifts Secured Bring Total Commitment to $34.2 million Washington, D.C. (October 2, 2014)—After the...
    • FrenchFries
    • Thread
    • age als als research alsa chair challeng clinical cost cure data diagnosis donations early genetic gifts hope ideas increase information medical neurology ohio progression quality of life research risk robert stem cell support therapy website wes work
    • Replies: 0
    • Forum: Research and trials
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