als research

  1. A

    Research Progress

    Please don't get the bashing stick after me. I guess I just need to vent. So how much progress have we made since the first case of ALS was diagnosed? Let's see Lou died in 1941. He lasted 2 years post onset. Wow what progress we have made. Seems all the other illnesses have made advancements...
    • All is lost
    • Thread
    • als als research bucket challenge cure diagnosed ice ice bucket challenge information money onset rant research treatment usa vent
    • Replies: 8
    • Forum: Research and trials
  2. D

    Familial ALS research

    We have a long history of ALS in our family, dating back at least 4 generations (losses include my mother, grandfather, great grandfather, and many distant relatives). I was surprised to know that my family didn't have much documentation or research to pass along to me when I was diagnosed. My...
    • Dylan
    • Thread
    • age als als research back biogen breathing cannabis clinical clinical trial crying diet fals familial familial als family family history kids newly diagnosed oil progression research scared symptoms treatment weakness worried
    • Replies: 1
    • Forum: Familial ALS (FALS)
  3. B

    Twitching and Anexity

    One year ago, I noticed fasciculations in my calves, which then spread throughout my body! My legs would cramp up, I felt like I was getting weaker, would constantly search for atrophy, my anexity went through the roof, people close to me thought I was having a breakdown! I seen a bunch of...
    • Bostonjimmy
    • Thread
    • als als research atrophy bfs breakdown cure emg fasciculations muscle research tests twitch twitches twitching weakness work
    • Replies: 1
    • Forum: Could this be ALS?
  4. C

    if someone could give their thoughts

    15 weeks ago has noticed I slurred a few times. This when was I talking a word here and there. then again a few weeks later-not anymore that I recall . No one has mentioned it to me. Then 10-11 weeks ago I began to have stiffness arms and calves. It went away in a few weeks. I have felt off...
    • Cattl
    • Thread
    • als als research back bulbar cell clinical eating emg family fear foot mri neurology problems research stem cell stem cell research stiffness swallow symptoms twitch voice weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  5. starente15

    Question for you Pete

    I know someone whose family is affected by FALS. They have a running team that raises money for ALS Research and are running a half this weekend in my father's memory. I keep wondering how I can I make a difference/feel like I'm doing something positive myself. My running skills are really bad...
  6. chally

    Big show

    Well this week is big for me and my cals. We have been actors& dancers our whole lives so far and have no intentions of stopping just because of a little old " nightmare" . We will be in tech& dress rehearsal all week for an up coming show called "Chally's Follies" at our theatre house. My...
    • chally
    • Thread
    • als research cals cure love pwc research work
    • Replies: 38
    • Forum: Stories of hope
  7. T

    Final Arrangements

    wow, how awkward to make final arrangements for a spouse. Talk about the last thing I wanted to do in life. He is adamant that his body go to science, ALS research like his mother and grandfather before him. Dr. Pioro at the Cleveland Clinic took charge of his mother and now my husband. These...
    • turnip
    • Thread
    • als als research back brain clinic conversation life love research wanted
    • Replies: 19
    • Forum: Current caregivers
  8. Nikki J

    The story of Dr Bedlack's tattoo

    I heard a shorter version of this in an interview with him a couple of years ago. This is more detailed. It is shared here with his permission My name is Rick Bedlack. In the past decade I have seen more than 1500 patients here at Duke with ALS. Tonight I will tell you about one who left a...
    • Nikki J
    • Thread
    • ability als als research arm back bipap clinic death eye familial familial als money muscles onset research respiratory respiratory failure stem cell stem cell research story swallow symptom tattoo wanted weight loss wrist wrong
    • Replies: 9
    • Forum: Stories of hope
  9. O

    This is it Folks ALS?

    Greetings all you wise people, experienced people. I really don't know what to say, so long story short: My father was a victim of ALS and pass away in 2009. I am a freelancer in IT as an Active Directory Consultant, or was until the morning of the 4th of August this year. I had noticed that I...
    • Osiyo
    • Thread
    • als als research als? clinic cost diabetes father fingers go away problems research scooter story tests tongue twitches work worried wrong
    • Replies: 3
    • Forum: Could this be ALS?
  10. O

    Participate in ALS research? Children in your family?

    Hi all, My name is Olly and I lost my Dad to MND/ALS a few years ago. He was diagnosed when I was 7 and died when I was 14 so much of my childhood/teenage years was spent caring for him before then dealing with the bereavement. I am now carrying out a PhD/doctoral study to investigate a way of...
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