als registry

  1. gbrown

    Caregiver Assistance

    To All: Please find below an email I sent to Coleen Maguire yesterday. The reply she sent me is very informative. For all you Okies, please let this senator know not to keep blocking the ALS National Register. If any of you are interested in the links she refers to, email me off line at...
    • gbrown
    • Thread
    • advocacy age als als registry alsa back cals caregiver cdc cost data disability early family grant grants helpful home care increase information insurance money nursing home questions respite senate support va benefits veterans wanted website
    • Replies: 5
    • Forum: General discussion about ALS/MND
  2. ZenArcher

    Advocacy Request

    Please go to http://capwiz.com/alsa/home/ Under Find Your Officials enter your zip code and click Go. Ensure that Federal is selected and click your Representative. Click the link next to E-mail. As a subject enter H.R. 5454 If it requests an Issue Area select Veterans Affairs In the...
    • ZenArcher
    • Thread
    • ability advocacy als registry alsa brain dementia diagnosed diagnosis diaphragm family information lou gehrig's disease military movement muscles please help problems support taste twitch veterans
    • Replies: 9
    • Forum: General discussion about ALS/MND
  3. ZenArcher

    Let's see how that flies

    I was in one of those moods today so I sent the below letter to CNN, Dateline, Fox News and Nightly News. :twisted:
    • ZenArcher
    • Thread
    • ability als als registry camp diagnosis eye fear health holiday hope life movement muscle pain paralyzed progression questions secure senate slurred speech speech treatment voice website
    • Replies: 20
    • Forum: General discussion about ALS/MND
  4. Lorie

    Als Registry Act/ALS Advocacy Update

    This is an E-Mail I received as an ALS Advocate from the ALS Association. December20th. Additional $3 Million for the ALS Registry - Congress Adjourns; Dear Lorie: Prior to adjourning for the year late yesterday, The ALS Association secured a tremendous victory as Congress passed legislation...
    • Lorie
    • Thread
    • advocacy advocate als als registry cdc early family health holiday increase information support update
    • Replies: 8
    • Forum: Research and trials
  5. C

    Data Information on ALS

    Hello Everyone, Just thought I would share with you data info, which is available to all PALS. Click on: www.alsa.org *New Scientific American Report on ALS *Possible ALS Drug Granted Orphan Status by the FDA Also, PALS and families of ALS can obtain free tapes, literature from the ALS...
    • caroliney
    • Thread
    • advocacy als als registry alsa arm cure data early free helpful info information lead possible als support treatment website
    • Replies: 1
    • Forum: Stories of hope
  6. C

    Registy/ALSA advocacy website

    Hello everyone, For your information. Please keep your continued outreach for a cure of ALS. Together we can make a difference. Please contact your Senators and express how you feel about a cure for ALS. Help fight against ALS. We must continue to build support among Senators who are not...
    • caroliney
    • Thread
    • advocacy als als registry alsa christmas cure family information support website
    • Replies: 1
    • Forum: Stories of hope
  7. C

    Support Continues To Build For Als Registry Act

    On December 6, Senator Ted Stevens (r-alaska) Became The 68th Senator To Formally Register His Support For The Als Registry Act! Thanks To The Terrific Outreach Of Advocates In Alaska Who Have Participated In The Association's National Call For A Cure And Veterans Day Letter To The Editor...
    • caroliney
    • Thread
    • advocacy als als registry carolina cure family health senate support veterans website
    • Replies: 2
    • Forum: Stories of hope
  8. C

    Cosponsor S.1382, the ALS Registry Act

    There is a form letter by the ALS Association Mail System that you may send to your senators and congressman. You can send the letter as is or add your personal story to the letter. The ALSA advocacy website: http://capwiz.com/alsa/home/ Lets fight this and find the cure today. Enough...
  9. C

    Als Data Base Record

    It Is Time For Each Of Us To Move Forward And Act On This Horrible Disease. Each Pals Must Give A Representative From Their State Information To Place In The Data Base For Record Comparison To Alleviate This Thief (als). We Can Do This, And By Providing The Information, This Disease Can Be...
  10. Lorie

    House Passes ALS Registry Act

    Full Story: http://www.al.com/news/huntsvilletimes/index.ssf?/base/news/1192699180303420.xml&coll=1 We will keep working harder to make thins happn for ALS! Lorie:-D
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