als registry

For your consideration... __________ As We Approach The Mid-term Elections, Please Ask Questions Hundreds of Americans have made the ALS advocacy trip to Washington. Many have met huge accessibility and caregiving challenges to go there to ask for relatively modest federal funding for ALS...

Today's The Day To Ask And Learn This is a good opportunity to learn about the US CDC ALS Registry project and to ask questions.

I thought that this might be helpful for those of you planning to attend. :):) We won't be going, no way to pay for the trip and expenses. REMINDER: Advocacy Day Deadlines Dear Kay Marie, Have you registered to attend the 2010 National ALS Advocacy Day and Public Policy Conference May...

If you haven't already seen this alert, action is needed ASAP to help secure funding for the ALS registry. Help Increase Funding for the National ALS RegistryShare Today at 4:26pm We need your help TODAY to increase funding for the National ALS Registry. U.S. Representatives Eliot Engel...

I just got this today from the ALSA. It seems to me that it is taking a long time to get anywhere. :-( National ALS Registry Timeline (as of February, 2010) October – December 2009 • Launch National ALS Registry website: Now available on the CDC website at CDC - Amyotrophic Lateral...

I thought I would share this news with you. $7.5 Million for the ALS Research Program at DOD $2.5 Million for Respite Care Dear Aleta, This weekend, the U.S. Senate appropriated an additional $7.5 million for the ALS Research Program at the Department of Defense (DOD), a 50% increase over...

Just got this e-mail from ALSA. (Why can't the US go in with this with Canada, Aus, NZ and the UK and get a REAL representative database going? Anyway ... this is a good start!) ------------------------------------------------------------------------ A few minutes ago, the House of...

Just received this update from ALSA Advocacy! House Votes to Increase ALS Registry Funding Dear Kay Marie, A few minutes ago, the House of Representatives passed legislation that will appropriate an additional $6 million for the National ALS Registry at the Centers for Disease Control and...

Hi, guys ... apparently there are two national registries ... or am I completely "Lost" again?" The one for vets and the one for everyone in US with ALS? Anyway ... received this notice from ALSA. In order to receive updates from ALSA about the progress of the registry and when we can begin...

I copied and pasted this from my email from ALSA Advocacy! Woo Hoo! Today, October 8, the Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry (CDC/ATSDR) is launching the National ALS Registry website. This is the first phase of building a website...