als clinics

And I'm wondering hoping he is missing something in cervical region. I am going to consult a neurosurgeon. Neurologist is ALS specialist. Background: Nov 2010 had dizziness & equilibrium problems. Felt foggy. PCP does a hurry up diagnosis of BPPV. Prescribes anti-nauseas med. Did notice sore...

I have a Cpap machine and it is hard to use. I don't want to through with a sleep study because i cant leave my house. Has anyone gotten a Bipap without going through with the sleep study? we dont have ALS clinics here either. Hospice will get me what i need, but i needd the "set of numbers"...

Hi, my name is Amy and I live in Michigan. I belong to the Patients Like Me website but there seems to be more in-depth information here. I started this thread because I have not figured out all the navigational aspects of this website and am typing on an iPod touch so I am afraid I will lose...

I wanted to post a thank you to all of you who share your stories and wisdom on this site. I joined the forum over a year ago after my brother-in-law was diagnosed. I have not posted before but have read almost everyday in an effort to sift through information that would be useful to my sister...

Just wondering if any of you had experience with either John Hopkins or Georgetown University ALS Clinics, looking to make a change.Thanks for your replys!

Today I learned a lesson on Medicare. It is a government run program and they do everything they can to prove it cannot work. I am so disgusted. My medicare kicked in on June 1st and I was told I had to have a prescription drug plan so I hit the internet and got one. I got the same one my...

Hi guys So this a basic question, but I'm a little confused with the practical side of managing care. Who manages your care? The neurologist? Or a primary physician and then, you assemble a team? I've seen people post about hospice and ALS clinics and Occupational Therapists and social...

ALS Canada passed along this information, which includes a Canadian trial location list (attached at the bottom of this post). A stage 3 trial has begun studying the efficacy of ceftriaxone, to see if it prolongs survival and/or slows decline in function in patients living with ALS...

Letter from the Executive Director As we wrap up the last few days of 2009, I wanted to congratulate you on the part you have played in supporting our families living with ALS this year. Through your generosity, we have been able to support over 400 patients in Georgia with home visits, support...

When do you finally decide it is no longer worth it to travel the distance to the ALS Clinic? Is it after you've obtained all of the necessary equipment needed, or can this be handled by the local GP that is willing to assist you? My husband's GP is willing to "treat" him, but requires total...