Hi all,
I’m writing a book on living with ALS. I’m curious if countries besides the US and Canada have a similar clinic set-up to what we have. We have “ALS clinics” which are held approximately every 3 months and are staffed by the attending neurologist and a team of therapists who all see...
After nearly 4 months of tests and 2 EMGs I have been diagnosed with ALS. Looking back a few years I can see small changes in health that progressed to this diagnoses. Next month I will be 77.
I am going to my first visit at an ALS Clinic (Indianapolis) on Tuesday and am preparing a list of...
My husband was recently diagnosed with ALS after a battery of tests from a referred Neurologists who suggest we get a second opinion. In the DC area we have John Hopkins, Georgetown and George Washington hospitals to choose from - all who have ALS clinics. We have appointments at both Hopkins...
Hello. My father was diagnosed w/ALS earlier this month at West Virginia University (WVU). The diagnosis and recommendation to begin Radicava was so swift from WVU that I suggested he get a 2nd opinion. We had the 2nd opinion at the Cleveland Clinic last week, and they want to re-run the EMG and...
I have PVA as my rep and they also want a DBQ to file claim even though my VA medical records under active problems they have ALS and the VA Doctors from Nuerology and Pulminary refused to sign one. I have been to a Neuro outside VA and they even refused as well as just agreed with VA. My...
Sorry I haven't been on in quite a while, I had so much happen to me at the end of last year that depression has really taken a major grip on me and I'm trying my best to fight it...but it's winning.
I was referred to Vanderbilt University to start attending the ALS Clinics there and today was...
I was diagnosed 3 weeks ago with als but neurologist is unsure of type. I have aiready lost use of my left hand and have weakness in right. I have an appt at MUSC in Charleston SC in Nov and wondering if anyone has had any experience at that facility. I am a veteran and could probably go to the...
Hello my friends, The words that you all share and the wisdom that you have spread on these forums has been invaluable.
I have been told by a friend and his pastor that I will be there at the right time for someone else that is going through this terrible disease and be able to help them. For...
Hi, my husband with PLS-bulbar onset for about 4 years now has symptoms that are worsening. I'm trying to convince him to attend an ALS clinic although he's not sure it would be useful. He has a neurologist (who diagnosed him early on) whom he really likes, but I feel more consultation with...