als clinic

Tom is meeting with the clinic Thursday, November 17. My thoughts are: - Tom's health 9/8 to now. - make sure the request has been submitted for AMX0035. - discuss Nuedexta, RX submitted? CVS does not have - why is there a delay in getting wheelchair eval to Kessler - why delay in...

I was wondering if people could share what’s the norm for the length of time in between ALS clinic appointments? My husband was diagnosed at the end of august and we went for his 1st clinic appointment at the beginning of October. I was surprised to hear that he doesn’t need to be seen again...

Hello, My mom was diagnosed with ALS in China last year in April. I joined the forum and posted a few questions at the time. I am grateful to those who responded and offered advices. Despite of the sudden mental and physical break down during the initial coupe of months after her diagnosis...

We had our first appointment at an ALS Clinic in Seattle yesterday and quite frankly, I was really disappointed. We came out of there with more questions than answers. The doctor was very nice but between her very soft voice, a mask and a full plastic face visor, we had a difficult time...

Does anyone go here & have some information on their experience? I'm thinking of switching (maybe next year). Thanks!

The neurologist who leads the ALS clinic at Dartmouth -Hitchcock is retiring and I have an opportunity to provide input on improving the clinics. I have made my own list that is specific to DHMC, but I wondered if you could share things that you really appreciated or disliked about the clinics...

Abnormal EMG in two limbs, progressive muscle weakness, and muscle fasculations are the reason for being referred. No official diagnosis yet but Neuro said ALS is on the table. Im terrified, scared, and feel like my world is collapsing around me knowing that ALS could be the diagnosis. Also...

Here was my last post from December 2019 -- Pulmonary Function Testing done today -- closer to ALS diagnosis? Summary of 2 past EMGs 3/26/2019 (Tufts / Neuromuscular doc #1) – 5 muscles tested in right arm and leg tested (Deltoid, Ant Tibialis, Vastus Lat, Gastro Medial Head, 1st dorsal...

I will be traveling to the ALS Clinic at Wake Forest Baptist Medical Center tomorrow. I have appointments with a physical therapist, occupational therapist, and my doctor. I am considering whether or not to begin Radicava therapy. I'm very concerned about the out-of-pocket cost (I'm on Medicare...

Yesterday we had our first ALS Clinic visit. I think my PALS was overwhelmed by all of the people. He says he is very tired. He was diagnosed 3 1/2 years ago but was pretty much on a plateau until about 2 months ago when he seems to have fallen off a cliff. For the first 3 years his left...