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  1. M

    Very Scared Bulbar Als??

    Hello everyone. I will try to explain what I have been going thru and any advice would be appreciated. I’m a 38 year old male. I started having dizziness in December 2017. I then had some left sided facial tingling around January 2018. For this my doctor ordered a Mri of brain and...
  2. F

    old but remains very appropriate

    there won't be a nativity scene in Washington d.c. this year the supreme court ruled there can't be a nativity scene on capital hill this Christmas season. this isn't for any religious reason. they simply couldn't find three wise men in the nation's capital. the search for a virgin...
  3. Nuts

    Never thought I'd be here...

    FTD was my greatest fear early on. Then I thought we'd escaped it. Now...not so sure. Memory loss...cognitive impairment (slow processing)_ and now full blow hallucinations and bad behavior. I've been told at least once to find someplace else to live. Im not taking the mean remarks...
  4. ErinandJen

    Experiences with mullein leaf tincture for lung health?

    Hi all, I'm wondering if anyone here has used mullein leaf tincture (or any other variants of mullein) to manage secretions and general lung health. If you have, what effects did it have for you? My partner Jen is a PALS with a trach and has thick secretions (even when she's sufficiently...
  5. G

    Gastroparesis?

    I don't really think that I have ALS but I have some weird neurological symptoms so just a bit curious. I have read of PALS developing gastroparesis. Is that usually a late stage symptom or can it be a first symptom? Out of the blue one day I became violently ill and ended up in the hospital...
  6. D

    Can it be the first signs of ALS?

    Hello, First of all thank you for all who will read my story. I would really appreciate to any comments and experiences or advises from you. I am 26 years old female. Recently i have found similar condition - ALS that could explain my illness. I know it would be a rare case of this disease...
  7. R

    Does this sound like ALS?

    Hi all, I want to start by saying thank you in advance for any advice/support you can give me and for welcoming me to the forum! My symptoms started almost 8 weeks ago, where I noticed twitches in my left arm and shoulder. They were big thumpers that I could see through my shirt which led me...
  8. N

    Extensive medical workup; symptoms getting worse

    Hey there, I’d like to start by saying I appreciate those who are going through this illness and vigilant on these forums, as the comfort of having friends with same possible experiences is something that helps with my current fears. Here’s my last 3 months of hell: Male Age 29. Before...
  9. M

    Question about NIPPV machine

    My dad has respiratory onset ALS diagnosed in May 2017, he still has full use of his hands and his speech and swallow are only minimally affected but he is really really weak can only walk assisted for 2 or 3 steps so he has a power wheelchair for getting around. At first he would only need...
  10. N

    C9orf72 Found on Family

    Hello to everybody, I haven't post in this forum for almost 3 years, but I still fight with my symptoms. To remind you my family situation, I am male, 42 years old. I have lost two uncles in the age of nearly 50 from ALS. They were brothers from my mother's side. Also her father(my grandfather)...
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