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  1. J

    Here is what teenage ALS girls has in common:

    link contains unsuitable sublinks etc, so use your search engine, i wont paste it. just google: EXCLUSIVE - The 7 mothers who lost their teenage daughters to ALS 5 months old
  2. I

    Minor bleeding at tube site. Normal?

    I had my feeding tube put in in April of last year. My ALS is bulbar and I no longer can take anything by mouth. Several weeks ago I noticed that there was blood at the opening. It is not a lot, but there appears to be a little blister or skin tab protruding from the opening. I am now...
  3. M

    A delayed introduction

    Hello All, I want to first say thank you for taking the time to read this post. I have avoided posting here for about 1 year but due to changes recently I have decided, still with some hesitation, to post. I was going to write more of my history but I do not want to take up your time any more...
  4. S

    No diagnosis - Nervous after 6 months

    I’m concerned about my symptoms I’ve been facing them for just under 6 months. Let me start out by saying that my life is very stressful. I manage about 500 people all over the world. The ups and downs of corporate politics are very impactful and my stress level in the last 6 months has been...
  5. R

    More Than Our Stories 2019 - A different kind of advocacy conference

    Please consider participating in the second annual www.MoreThanOurStories.org Feb 12-13 in Washington, DC. This is a different kind of advocacy conference. No Powerpoint. No formal presentations. Lots of healthy discussion about government policies that can be improved for people dealing...
  6. B

    Not sure if I should be worried or not...

    Hello all. I’ll start off by saying Happy New Year and I hope everyone has a joyful evening. I’m a new member to this forum but I’ve been reading post after post as a guest. I’m a 21 year old female who has been having worrisome (to me) symptoms. I’ll admit to everyone I am somewhat of a...
  7. M

    Do I have ALS

    Hello, people!!! I'm so sorry for bothering you all and taking your precious time.. One day(it's became my dream lately..) I want to discover a cure for this awful, terrible disease... I'm a tall(1.85 m), white, 14 year old boy living in Europe. Recently I've noticed muscle twitches mainly in...
  8. A

    is this a cold?

    I think I read that colds manifest differently in us. Everyone around me has been sick and even though very careful I think it's my turn. only symptom is increased mucous causing repeated choke attack and runs to cough machine, like ten times a day?! Otherwise just fatigued. have increased...
  9. L

    reflexes and pain question

    Hi, I asked a single question lat month and was satisfied with the response as I felt it was helpful and very much appreciated. I just have two quick questions maybe someone can answer for me. Are hyper reflexes usually an early presentation or after weakness? secondly is cramping a late stage...
  10. N

    I feel like i lost connection with my own body

    Marry Christmas Everyone! Sorry for the long post and bad English. To know my story you have to know a bit of my background. I was born in the Congo and lived there until age 7. I just turned 30 and things haven't been going to well personally to be honest. As you may or may not know, Congo...
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