age

  1. K

    Thoughts on When to Get Hospice

    My PALS and I have decided to use hospice when the time is right. He uses a Trilogy about 17 hours a day, does not want to be trached or have a PEG. He is able to eat whatever he wants (with the help of water to wash it down), he transfers from scooter to chair/commode but anything he does is...
  2. F

    drinking age

    do you know why Georgia raised the legal drinking age to 28? we wanted to keep liquor out of our high schools.
  3. K

    Waiting on Neuro, scared.

    Hi, Thank you in advance for your time. I've read many of the posts here and I am in a similar situation. My grandmother died at age 76 from ALS, and it has given me a lot of anxiety over the past 10 years related to it. I also had a more distant relative (a cousin of my father) who I believe...
  4. P

    Waiting and worrying

    I'll try to keep this as succinct as possible. I have been experiencing a variety of symptoms for several months. Symptoms have included; shortness of breath, fatigue, tripping/falling and most recently atrophy and weakness in my left leg. I have been evaluated by a pulmonologist...
  5. Jamesgol

    Wheelchair & van advice?

    I have now reached the stage where a wheel chair and van combination are needed. My neurologist just wrote the prescription for a wheel chair yesterday. The ALS Society is going to loan me a Permobil F3 until I can get one of my own. Which type of wheel chair (and options) do you prefer? What...
  6. T

    Sleeping all the time...early stages

    Hello: My husband was diagnosed this past Dec. He has limb (legs and arms) onset. He is still working and driving. But...he sleeps a lot. Like almost all the time when he is not at work. I'm just trying to be patient with it and I know extreme fatigue is part of this awful disease. I...
  7. S

    My Dad was diagnosed a year ago and I’m looking for some support

    Hello all, My father was first diagnosed with lower motor neuron ALS roughly one year ago. He got the official diagnosis in September 2018 when they were finally certain that it was not CIDP. Within the week my Dad was diagnosed, I accepted my first job out of graduate school and moved 2 and a...
  8. M

    Is this Bulbar PLS/ALS?

    Hi so to start with I’m male age 26 So a few months ago I got rapid heartbeat tachycardia (I know not often a symptom of MND), They found no cardiac explanation, then started getting muscle twitches which I still get sometimes, again no obvious explanation. I noticed a panting in my throat...
  9. KarenNWendyn

    The Robot

    A father buys a lie detector robot that slaps people when they lie. He decides to test it out at dinner one night. The father asks his son what he did that afternoon. The son says, "I did some homework." The robot slaps the son. The son says, "Ok, Ok, I was at a friend's house watching...
  10. A

    Need Advice

    Thank you the helpful saints of here who tried to help people from all over the world. I have read not only stickies but may be all the threads of this section. Yes I have full of anxiety and try to struggle against it but I am not able not manage it yet. September of last year I had headache...
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