age

  1. M

    End stages

    It's hard to believe that a month ago my dad was still walking, eating and speaking normally, using his left hand/arm. His progression since then has been astounding. He now has a wheelchair, hospital bed, lift, bi-pap, oxygen to help asthma, cough assist, suction, morphine...the list goes on...
  2. K

    Possible ALS symptoms?

    Hello everyone, Firstly to all of those living with this terrible disease, god bless you. My uncle was diagnosed with ALS in 2013 and unfortunately passed away last year at age 66. Firstly I am 27. I suffer from GAD (generalized anxiety disorder.) and OCD (obsessive compulsive disorder.) Last...
  3. tripete

    Things that you do not hear about ALS

    In June of 2016 I posted a thread about Pain in ALS and how the "experts" tell us that ALS, as defined by the dying/malfunctioning of our motor neurons, is not painful. As time has progressed I have found many other things that "they" tell us are not issues that are. Like Smell, Bathroom...
  4. F

    My wife died of ALS last Monday, Nov 27,2017

    This is the last time that I will post to this site. I was a care giver for my wife for 2 years....I was in denial about her ALS and never believed it. She had horrible pain before she passed...so anyone who thinks that ALS isn't painful is wrong. Some people with this horrible disease do have...
  5. J

    Still here thanks to RCH4

    RCH4 revisited again I have been on the ALS drug RCH4 for the past 19 months and I am upset about the moderators comments which are most unfair to a charity who has provided both support and RCH4 free of charge worldwide for years. The moderator here, Laurie, has locked two previous threads...
  6. Lkaibel

    Game Changer

    I am beginning to think Brian is going to go a LOT further with this than we previous thought/planned. That is great news in a lot of ways, but also a game changer. Since things at home have thus far been a lot easier to modify than I had thought earlier on, and I am confident we can keep...
  7. A

    Looking into home help

    My PALS (mom) agreed today that perhaps some part time home help would be agreeable. She lives alone in a big house and is getting exhausted walking around, and wants to be able to go out, but it is getting difficult alone. She's only diagnosed a month ago so this is all happening faster than...
  8. WendyWooG

    fals or sporadic?

    hi i have als, limb onset age at start of symptoms 47. when i was diagnosed there was no hint of any family history. Not good but at least i wasn't worried about my kids. today i have had the devastating news that my mum has been diagnosed with bulbar onset at age 75. the doctor has...
  9. Kristina1

    what an impact

    I was living in a house with tons of stairs that I had to go up and down many times every day. I was struggling to manage stairs due to upper leg weakness and poor balance. So we moved to a small ranch style house with no stairs. After the first week I already noticed a huge increase in my...
  10. T

    Exhaustion

    About a month and a half ago or so, my energy level just plummeted off a cliff. It's a struggle to do anything. I get really tired going up stairs. I get tired walking. I get tired feeding. I usually don't really get out of bed until noon. I manage to get a couple feedings in before that, but I...
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