Dear PALS, I've been reading so many threads and posts since June 2017 and today I decided to post for the first time. First of all, thank you for all those informative posts and everyone that takes there time to answer.
I will try to keep the post short, but it it's very complicated so please...
age
als
als?
atrophy
back
breathing
breathing problems
bulbar
clinic
denervation
diagnosis
early
emg
fasciculations
mestinon
neurologist
normal emg
onset
possible als
respiratory
shortness of breath
stress
symptoms
vision
weight loss
My mother and two maternal aunts all the three died of mnd almost at same age of 61 years. Nobody else was earlier diagnosed of the disease. None is afflicted at present as well. Since it has hapened to female members only and i am a mother to two daughters. I am distraught . I feel i have no...
Hi I'm very sorry to bother anyone I'm sat here with tears rolling down my face wondering what the hell to do with myself and I found myself here.
I have 4 children two are disabled ,
Over the last 7 weeks I've been twitching all Over including my toung , I went to see my gp who said should go...
My Dad is now at the stage that he is having trouble swallowing. He can still walk and talk (minimally) but his main issues are with breathing and now swallowing. He has declined the feeding tube twice, last time was in August when he went to the appointment for the tube surgery and an hour in...
I have familiar ALS with the C9ORF72 mutation. Progression is pretty quick, since being diagnosed in February 2017 the symptoms developed from not being able to lift my right foot to the current stage of not being able to walk or stand, not being able to lift my right arm and hand and the onset...
It's been 7 weeks since my mom passed away . My parents apartment has been emptied and keys have been returned. People and agencies have been notified, and death certificates picked up. Time slowly starts to go back to the pre symptom, pre Dr visits, pre ALS days. And I miss her.
I know she's...
I'll just jump right in...
4 years ago my great aunt was diagnosed with ALS. She passed 2 years ago at the age of 76.
Last year my mom (50 years old now) had a TIA stroke which was followed by a lot of problems the doctors couldn't figure out, including she can't lift her arms up to her shoulder...
Do you have frequent muscle cramps? Have you been diagnosed with a motor neuron
disease like Amyotrophic Lateral Sclerosis (ALS), Primary Lateral Sclerosis (PLS), or
Progressive Muscular Atrophy (PMA)? If you’ve been diagnosed with motor neuron disease
and meet the requirements listed below, you...
advocacy
age
als
atrophy
clinical
clinical trial
communication
cramps
diagnosed
diagnosis
drugs
health
information
life
muscle
pls
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work
On behalf of the The ALS Association and Vitamin Enriched, a real people casting company in NYC, we reach out to PALS and CALS for participation in a public service campaign.
We are looking for people who are living with mid to advanced stage Amyotrophic Lateral Sclerosis (ALS), and their...
Raoljost - (A Guiding Light)
Chapter 1
I wasn't able to run fast enough. My legs and arms were going as fast as I could force them to move and they burned with effort. My breathing was labored, but under control. Sweat poured from my brow and burned my eyes.
I could hear the hounds of hell...
ability
age
angry
breathing
crying
dad
death
desperation
exercise
eyes
fatigue
fell
free
grief
lead
lift
nose
pain
power
problem
sleep
story
stroke
taste
wanted
wes
wrong