I'm hardly ready to make this kind of post, but I can't deny it any longer - the foot drop is worsening by the month and I'm really starting to feel it now. My walk has turned into more of a high-stepping march and it's really wearing me out. No tripping and falling yet, but I don't think I...
I have a problem with hyperflexia of the right knee as well as foot drop. At my last appointment with the PT, she had me try a ready-made, carbon fiber AFO, but it did not have a hinge at the ankle which restricted movement and made it much harder to get up from a sitting position. She then...
I was fitted for my first AFO and am awaiting it. However, my knee hurts a lot, sometimes to the point where I don't think it's safe to be walking around without it giving out. Is there anything to use in this time frame to help with the pain? I'm thinking of buying a knee brace and using it...
Oh Lord........as if dealing with the ALS diagnosis isn't enough for my poor husband to deal with, he actually had a heart attack on Tuesday! I'm so sad, he has been doing so well, he just got new AFO's that have really been helping him to walk better and I was thinking "okay" maybe everything...
I have read here many times to stay ahead of your needs. I have read about PWCs a lot because I started with right foot drop and that leg is progressing, moving up above my knee. I use an AFO on that leg but it gets weak fast and it' starting in my low left leg. I have fallen once. I'm very...
I'm shocked and devastated at my husband's marked progression the last 4 months! He was doing so good in January that his neuro at the ALS clinic in Huntsville double checked his records to make sure he "actually" had ALS. Fast forward to April/May and his day-to-day walking with his AFO's is...
I am writing just the facts. Not my opinion or feeling. Just the facts.
March 2011 Charlie horse in left leg waking me at night
April 2011 strange gait and muscle twitching, fatigue, Brain MRI shows lesions atypical for MS, start using cane for assistance.
June 2011 MS neuro orders more...
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Hello Everyone,
I have been reading and learning for several months now....I feel like I know so many of you already....My husband Mark was diagnosed with ALS 3.22.11. His symptons started in June 2009 with little things like having trouble with buttons on his shirts....it is funny how we just...
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Hello everyone! My name is Scott and my wife tells me this is an awesome forum to be a part of. I'm not sure if I'm ready for this because other then an afo on my left leg, my life has'nt changed much. I still work full time and fish bass tournaments on the weekends! I'm not hiding from the fact...
Hey everyone,
Brief background on me: first noticeable symptoms in around January '08 at 27 years old, diagnosed October '08 after a failed nerve decompression in my arm (woops!), 2nd opinion confirmed 2 months later, and unfortunately so did a 3rd opinion a few months after that - stubborn...
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