afo

  1. K

    Officially diagnosed

    I've been kinda hiding in the background and reading all that I can from everyone here and have decided it's time to come out of hiding or more likely denial. I was diagnosed in March of this year after a four day hospitalization that included several MRI's, numerous lab tests and an EMG. I...
  2. K

    Exercise!

    I have been going to a workout place, three times a week now. I started 4 weeks ago. It is 100 degrees in the room, it with a lot of elite athletes. It's hard to describe, but I would say it's mostly calisthenics, and stretching. It's about an hour or so, he starts with a motivational "lecture"...
  3. scaredwifetx

    Need advice on AFO's

    Hello everyone, Steve had clinic today and we found out a lot of new info on Steve's progression. I will not go into detail on this thread but do need some advice. I trust the opinions on here more than anywhere online. Steve was told he needed to get AFO'S for both feet. We tried the pharmacy...
  4. Green Queen

    Cruising with Disabilities

    Not sure if this is strictly the best area, but I just wanted to share a bit on the cruise with disabilities. So far only the right side of my body is affected. I don't use my right hand much (ever, if I'm honest). I wear an AFO. I can walk with a stick but not too far. Mainly due to...
  5. M

    Worried

    Good Evening, I have been reading many posts on these forums, and I guess I was looking for information, that would make me think there was no way my husband could have ALS, but sadly, it is the opposite. A little background- In August of 2014 my husband broke his ankle on a rocky beach. It...
  6. Mike in Maine

    AFO Fitting

    Went for my composite AFO fitting today, tried a couple different types. Ended up with one that encircles the whole upper calf, wow felt amazing. Pick it up next week, I get to say goodbye to the cane. Can't wait. Mike
  7. Nikki J

    I am glad I got my....

    This thread is for PALS to share what benefit they see from having some kind of ALS "add on" Such as power chair bipap feeding tube. Yes maybe it seems like propaganda but I often see PALS post that after hesitating they are glad to have a certain thing I am glad I got my afo early. It helps me...
  8. 4tloml

    How hard to push for a scooter or power chair?

    Steve has been sharing some of his great adventures since he's gotten his chair and they've gotten me thinking--but I don't want to hijack his thread. So, I'll ask here. PALS & CALS, what is your opinion about how much I should encourage my PALS to get a scooter or wheelchair for traveling? I...
  9. Green Queen

    Sorry, I have questions

    Good morning all. As you know, I have a 'kind of' diagnosis of PLS or it's variant Mills Syndrome (6 neuros can't be 'kind of' wrong, can they?) Still waaay in early stages and even though I think I'm asking the right questions...am I? So, if anyone can answer these to the best you can, I would...
  10. M

    CALS needing tips from PALS

    Hello, This is my first time venturing out of the Care givers forum, I hope I picked the right place. My husband has limb onset ALS that started in his left leg. He has severe foot drop and wears an AFO and walk with the aid of a cane. We are just now starting the PWC evaluation process...
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