advocate

Let me preface by saying I am beyond frusturated. My mom was diagnosed (finally) on 2/18/13. I was in shock and didn't really get all the info my dad was giving. So I called them yesterday. I knew the neuro had referred them somewhere... I assumed it would be the ALS clinic here in Dallas...

I have searched this site to locate any sharing about the long-time pro-life advocate, Michael Schwartz,63, who died February 2, 2013 after a long battle with ALS. According to World Magazine: "He was a lobbyist for concerned Women for America and the House Family Caucus and spent the past 15...

This morning I received this email: Dear Family and Friends of Sister Angelis, OCD (Sharon Crump), It is with sorrow that all of us here at St. Joseph Residence, Seattle, Washington, email you to let you know that our dear Sister Angelis, OCD, (Sharon Crump) died suddenly at 7:49 a.m. Monday...

While I certainly wouldn't wish this on anyone, Richard Tisei's father had ALS... maybe someone with personal experience with this horrible disease can be a good advocate in Congress for us all. Ironically our former governor (not Romney) Paul Cellulli, is also battling ALS.

I haven't been on here in a while but I am deeply saddened and extremely anxious awaiting an EMG and nerve conduction study scheduled on Oct. 9th. After a collection of apology letters from doctor's and 7 neurologists, we are at the point of not turning a blind eye to my condition. On Sept...

** banging fork and spoon on table rhythmically while chanting ** WE WANT OUR LIKE BUTTON BACK, WE WANT OUR LIKE BUTTON BACK... Hear ye, hear ye, o' PALS and CALS and friends of mine, Are you too looking for a way to show others our appreciation of their... helpful hints caring comments...

walk to defeat als is the major fundraiser for the als association. money raised is what provides grants for research and drug trials world wide. it is important for us recently diagnosed and able to get out and about to support this mission. organise a team, seek sponsors and join a walk...

So, I guess I should refresh your memory of my current situation: I'm a music teacher at a primary school and have been pushing to make it through to the end of the year. Unfortunately, progression has just been so much faster than I (or anyone) had really expected. Things really came to a...

Last night I had the opportunity to speak at a local high school. They have an annual concert titled Music for Hope that raises money for ALS and the American Cancer Society. It started after one of the band parents was diagnosed with ALS. It felt good to advocate and to thank everyone for...

All members of the ALS community who reside in Georgia, please be aware that myself along with a couple of others have arranged an Advocacy, education and awareness day at the State Capitol on March 7th from 8:30 a.m. - 12:30 p.m. If you are interested in attending or have any questions please...