advocate

  1. Tomswife

    Patient Advocate - a resource for PALS

    Mission Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit organization which provides case management services and financial aid to Americans with chronic, life threatening and debilitating illnesses. If you find you are struggling to pull together care resources, a Patient...
  2. Nikki J

    Stephen Winthrop

    A fellow Mass General patient who was an advocate for PALS and trustee for ALSA. He was a brave and good man who fought a long battle ( diagnosed in 2013). He will be much missed. Deepest condolences to his family and friends
    • Nikki J
    • Thread
    • advocate alsa diagnosed family friend
    • Replies: 5
    • Forum: In memory of
  3. A

    Help with diagnosis

    My mother is having a very hard time getting a diagnosis. She is 71 years old. Tingling in her legs and fatigue with even one block of walking in her legs for the past three years. Two years ago she started having difficulty clasping a necklace and now there is some atrophy between her thumb...
    • azlat
    • Thread
    • advocate als atrophy breathing diagnosis early emg fasciculations fatigue finger getting a diagnosis ivig neurologist supplements swallowing symptoms test thumb
    • Replies: 3
    • Forum: Multifocal motor neuropathy
  4. T

    Doc said weakness in one leg, spread to other leg right after. Help!

    Hello everyone, I have been going through some of the symptoms for early onset ALS for the past two weeks or so and I am terrified. I have read through the stickied threads at the top of this forum and I am still convinced that I may have some form of ALS/MND. The first signs were an...
    • Telmo
    • Thread
    • ability advocate als back balance brain early emg help! lift mnd neurologist onset symptoms twitching weakness
    • Replies: 42
    • Forum: Could this be ALS?
  5. D

    New report on California aid in dying law

    According to the Cal Dept. of Public Health, up to 20 ALS patients have taken their own lives under California's "aid in dying" law after six months. I do not oppose the general idea of permitting physicians to assist the suicide of terminally ill patients who would otherwise suffer...
    • Dave K
    • Thread
    • advocate als choking clinical death dying early end of life family family member fear free health hearing hospice information life medical nurses palliative care problems respiratory respiratory failure sleep support
    • Replies: 19
    • Forum: General discussion about ALS/MND
  6. KimT

    I was on the radio today

    I have a friend who is a writer and religious historian. He has a talk radio show every Sunday afternoon and I was his guest today! My friend is an atheist so I was a little apprehensive about having a 30-minute conversation with him, live, on air!!!!! It went well. I was able to advocate...
    • KimT
    • Thread
    • advocate als back conversation friend
    • Replies: 8
    • Forum: Stories of hope
  7. M

    Now questioning my neuro problems...

    Hi all. I am a young female who has been having on going neuro problems which now seem to be getting worse. I presented to my neurologist a few years back with spastic parapasesis. They were concerned as I was told my neuro exam was very abnormal. I have spasticity and weakness, muscle wasting...
    • mummy24
    • Thread
    • advocate als atrophy back clonus cramps denial diagnosis emg emg? falling familial familial als female genetic getting a diagnosis health mri muscle neurologist problems tests twitching weakness young
    • Replies: 15
    • Forum: Could this be ALS?
  8. F

    Thank you (goodbye)

    Well with this account ban it or delete it do what you must. My name is not Franco and I have four accounts on this website all banned. Before I go on I never had OCD or health anxiety until August 2015 when I was 18 years old and went through all these diseases until I found this one.. I'm...
    • Franco
    • Thread
    • 18 years old advocate age als anxiety atrophy bulbar cure diagnosed fingers food foot health mental health problems reading scared swallow symptoms thumb twitches umn weakness website worry wrong young
    • Replies: 1
    • Forum: Could this be ALS?
  9. M

    Hope. (Goodbye)

    Hi all, My name is Mallic and I don't have ALS. After experiencing every ALS 'symptom' in the book I am happy to finally say that. In 2014 I started experiencing fasciculations which eventually spread over my entire body and I signed up for this website under a different alias. In 2015 I felt...
    • Mallic
    • Thread
    • advice advocate age als anxiety awareness book emg fasciculations food goodbye hope life scared symptom symptoms tongue twitch website whine worry
    • Replies: 1
    • Forum: Could this be ALS?
  10. J

    Medical marijuana and als

    My father was recently diagnosed with als and has already had rapid progression, doctors giving him a year to live. I am a huge advocate for medical marijuana and have read many positive stories about its effects on als. I would like to know if anyone has any suggestions of dosing or specific...
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