advocacy

  1. Lorie

    H.R. 2295 ALS Registry Act/Help Needed

    I have become involved with ALS Advocacy anywhere I can. Please read the following. If you live in any of the states that have not sponsered the bill please contact your Senators. Please Read! Thank you, Lorie 200 Cosponsors…and Counting! Let’s Get a Majority Dear ALSA Advocate: Your...
  2. R

    ALS Registry Act Update

    For those in the U.S., please put your civics lessons to work and contact your legislators for some support! Tools at http://capwiz.com/alsa/home/ work great. Please ask your friends and neighbors to help, too! Following is from ALSA...
  3. M

    ALS org testifies before Congress

    The ALS organization testifies before congress. The Advocacy Department had a hearing earlier this week at Capitol Hil. The ALS association called on Congress to speed ALS drug development and ensure that people with the disease have timely access to new treatment. A 35 year old fatherof...
  4. L

    Stem cell study zeroes in on ALS cause

    Hello all, I also belong to the ALS Advocacy Community - I received an interesting email this morning - "Mutated nerve cells may play role in Lou Gehrig's disease, researchers say" - Click on the below MSNBC health news link below for the rest of this interesting story. Take care all - Lee...
  5. T

    Lifespan Respite Care Act Passed by the Senate

    Received this email today, and wanted to share: -------------------------------------------------------------------------------- The Amyotrophic Lateral Sclerosis Association, Capital Office 601 Pennsylvania Avenue, NW, Suite 900, South Bldg., Washington, DC 20004 (202) 638-6997 * Toll-free...
  6. T

    Michael J Fox

    Generally a purely fictional reader of sagas, romance, mysteries, intrigue, etc, always a book in progress, pages folded over on the couch to save where I had left off, I was loaned the first autobiography I have ever read, Michael J Fox, "Lucky Man". I found the book rivetting, having watched...
  7. T

    I Am Me

    Hi everyone, today i've felt more Hopeless about my brotHer's condition tHan i Have in a long time because He's past His plateau and is now discovering tHat His legs are at about 30% of wHat tHey used to be. but His spirit is just so incredibly inspirational tHat He still convinces me tHat...
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