2nd opinion

  1. S

    Should I get 2nd Opinion?

    Hello, Here is my history: 2013-2014: 2-3 times a year, sclera of left eye would turn red and eye would be very painful when focusing on objects within 2-3 feet (such as reading, looking at hands, etc.). Treated w/ antibiotic and then steroid eye drops by PCP with no success. 09/2014...
  2. K

    Take the advice given on this site .. get a qualified 2nd opinion

    I thought I would post this here in hopes of helping others who have either been told they possibly have als or those who believe they do. I was told I had possible als due to four abnormal emg and clinical exams, however there were always some symptoms that did not add up and I have very...
  3. N

    So Sad

    Hi, I'm not sure of what I want to even say. Somehow, I just feel better being on this site. I'm on it daily. Ultimately, I'm just really sad. Sad of what is and what's to come. We have such a BEAUTIFUL life! The other day just for a "moment" I thought, "what if I just PRETEND this is not...
  4. K

    Preliminary diagnosis overturned by 2nd opinion

    It seems that this roller coaster is finally coming to its last stop, 21 months from the beginning of emg/ncs and referral upon referral we find ourselves in limbo but with the advice of those on this forum with a competent Dr. When I read through posts I see a very common theme the g is very...
  5. S

    Referred back to GP

    The first week of this month we went to the neurologist for the 2nd time after diagnosis. She said there is nothing more she can do for us as all we asked for was a definitive diagnosis. We did get a 2nd opinion and ALS was it. Out of UNCO in Aurora, CO. Dr. Ringel. Now she says we no longer...
  6. S

    My husband was diagnosed in September 2015

    When I met my now husband in June 2011, he could use his left hand and walk well. We got married a year later and started seeing neurologists the next week. Since we have been to 3 Drs. Had all the tests(Mir twice, emg 3 times, spinal tap, blood work etc.). Finally in August last year, we...
  7. B

    Ongoing Testing for MND

    Hello. I am new to this forum.I am male, age 66. In May 2014 while at our home in Ohio, I discovered I could not start going up a ladder with my left leg no matter how hard I tried. Prior to that, I sort of "pulled" a muscle in that leg simply slow-dancing with my wife :). Then I started having...
  8. N

    Hello everyone!

    Good afternoon everyone, I was diagnosed by ALS specialist at Mayo Clinic here in Jacksonville just after Xmas, I have limb onset ALS. I am 28 years old and have no family history, although my grandma did have dementia unkown if it was FTD or not. Symptoms started around 7-8 months ago or...
  9. P

    Newly diagnosed

    Hi all! My name is Paula. I was recently diagnosed with MND and Dr's say all test point toward ALS. He said he can't give me a definitive answer right now because I can't get an MRI due to a titanium plate in my neck. I have other symptoms such as numb hands and arms that doesn't necessarily go...
  10. chally

    2nd opinion in nov.

    i now have a date for a 2nd opinion w/dr belack but not at duke but at durham VA as he works there also,so i am happy about this. any feedback on questions i might write down to remember to ask him would be helpful. i know others here have seen this guy and might have a bit of insight. thanks...
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