2nd opinion
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Rushed ALS Diagnosis ??
First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support. My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS. Some background - My husband is 51 and...- Motyl
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- 2nd opinion als brain death diagnosis emg family family history family member father heart lead mri muscle neurologist night stress stroke support symptoms test twitches wanted weakness
- Replies: 5
- Forum: Could this be ALS?
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Nervous I have ALS / Just saw a Neurologist
Hi All, I have been reading a lot of the posts on this site for the past week and half and decided to finally post my own story. I have been dealing with a lot of weird symptoms lately and decided to see a neurologist about it earlier this week who specializes in neuromuscular issues and has...- Jshemnitz
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- 2nd opinion als am i just crazy? clinic emg ice muscle neurologist reading story symptoms tests weight loss wrong
- Replies: 11
- Forum: Could this be ALS?
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Likely Not ALS - that's good news!
2 prior EMGs (Nov & Dec) with neurologist #1 noted chronic denervation, resulting in a "Possible ALS" diagnosis. First EMG (Aug) did not show any issues. Dr #1 was clear that lack of muscle weakness/atrophy after 9 mos of continuous fasciculations and cramping was encouraging. Next EMG in 3...- markp99
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- 2nd opinion als atrophy bfs chronic denervation clinic cramping denervation diagnosis fasciculations heart medical muscle muscle weakness neurologist possible als progression symptoms testing twitching weakness
- Replies: 6
- Forum: Could this be ALS?
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Hesitant To Post But Very Concerned
I promised myself I wouldn't post here, but I caved to my stress over these symptoms. 42 year old Male. Initially I noticed a fine tremor in my left hand and feeling of internal tremor and starting having concerns over Parkinson's. In early November I started developing twitches in my legs...- cperson
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- 2nd opinion als arm back bed burning caffeine clinical concerned cramping cramps early emg eye fasciculations foot mnd muscle neurologist night onset pain sleep stress symptoms symptoms? thumb tremor twitches twitching wanted weight loss
- Replies: 12
- Forum: Could this be ALS?
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Seeking Orlando Neuro
Hello. I Live in Orlando Fl. I am 52 years young seeking a Neuromuscular specialist in my area. I have been getting passed around from physician to physician for 7 months now. My Primary care Physician team feels as helpless as I do and they have worked hard to get me answers. 7 months ago...- melab
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- 2nd opinion ability als autoimmune back chair clinic denervation driving emg fingers food foot hours insurance lift night onset shoulder symptoms test twitching weakness young
- Replies: 4
- Forum: Could this be ALS?
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Not Accepting PLS Diagnosis
Recently diagnosed w/ PLS & approved by VA 100% disabled, my husband is having difficultly accepting both. He knows he has health problems like difficulty speaking & very low on energy but he doesn't think he has PLS. We already received a 2nd opinion from the Mayo Clinic who agreed w/ the 1st...- 61beachbum
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- 2nd opinion clinic denial diagnosed diagnosis health pls pls diagnosis problems
- Replies: 7
- Forum: Primary lateral sclerosis
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Probable Diagnosis
Hello all, I never in a million years thought I would be joining a group here, but turns out it is looking like this is the next phase of my life. I started noticing a little weakness in my right leg, especially getting into a vehicle for ie. Also around the same time, I kept wondering if...- HopeNPrayer
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- 2nd opinion advice age atrophy back brain denial diagnosis emg falling foot foot drop grief hip insurance lead life lyme mnd muscle research stress symptoms weakness wes
- Replies: 8
- Forum: Could this be ALS?
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Gods plan is better than my own
First of all I am 41 with 2 amazing kids and been married to the love of my life for almost 25 years! My life is wonderful even though the past year has been tough. My symptoms started with shortness of breath or at least that is what slowed me down to notice. I was hospitalized 2 times for...- Sunshine94
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- 2nd opinion advice arm back bed breathing choke cramps cry fingers food headache ice neurologist night pneumonia pressure scared shortness of breath shoulder symptoms test treatment twitch walker weakness worry
- Replies: 15
- Forum: Could this be ALS?
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Someone With Bulbar Experience?
About a month ago I started having a bad headache in the morning and throughout the day sometimes. I don't usually have these types of headaches so it naturally worried me. My vision also seemed to be a little bit hazy without my glasses and I noticed I was waking up more frequently during the...- nowaythiscanbe
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- 2nd opinion als? anxiety back depression eye food headache headaches health heart night nose onset pain swallowing tongue twitches vision voice worried
- Replies: 16
- Forum: Could this be ALS?
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Advice on ALS Clinic Selection?
Hello. My father was diagnosed w/ALS earlier this month at West Virginia University (WVU). The diagnosis and recommendation to begin Radicava was so swift from WVU that I suggested he get a 2nd opinion. We had the 2nd opinion at the Cleveland Clinic last week, and they want to re-run the EMG and...- OHDaughter
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- 2nd opinion advice als als clinic als clinics alsa clinic clinics diagnosed diagnosis emg father information neurologist questions radicava website wes work
- Replies: 5
- Forum: Newly diagnosed
