First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support.
My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS.
Some background -
My husband is 51 and...
I have been reading a lot of the posts on this site for the past week and half and decided to finally post my own story.
I have been dealing with a lot of weird symptoms lately and decided to see a neurologist about it earlier this week who specializes in neuromuscular issues and has...
2 prior EMGs (Nov & Dec) with neurologist #1 noted chronic denervation, resulting in a "Possible ALS" diagnosis. First EMG (Aug) did not show any issues. Dr #1 was clear that lack of muscle weakness/atrophy after 9 mos of continuous fasciculations and cramping was encouraging. Next EMG in 3...
I promised myself I wouldn't post here, but I caved to my stress over these symptoms.
42 year old Male. Initially I noticed a fine tremor in my left hand and feeling of internal tremor and starting having concerns over Parkinson's. In early November I started developing twitches in my legs...
Hello. I Live in Orlando Fl. I am 52 years young seeking a Neuromuscular specialist in my area. I have been getting passed around from physician to physician for 7 months now.
My Primary care Physician team feels as helpless as I do and they have worked hard to get me answers.
7 months ago...
Recently diagnosed w/ PLS & approved by VA 100% disabled, my husband is having difficultly accepting both. He knows he has health problems like difficulty speaking & very low on energy but he doesn't think he has PLS. We already received a 2nd opinion from the Mayo Clinic who agreed w/ the 1st...
I never in a million years thought I would be joining a group here, but turns out it is looking like this is the next phase of my life. I started noticing a little weakness in my right leg, especially getting into a vehicle for ie. Also around the same time, I kept wondering if...
First of all I am 41 with 2 amazing kids and been married to the love of my life for almost 25 years! My life is wonderful even though the past year has been tough.
My symptoms started with shortness of breath or at least that is what slowed me down to notice. I was hospitalized 2 times for...
shortness of breath
About a month ago I started having a bad headache in the morning and throughout the day sometimes. I don't usually have these types of headaches so it naturally worried me. My vision also seemed to be a little bit hazy without my glasses and I noticed I was waking up more frequently during the...
Hello. My father was diagnosed w/ALS earlier this month at West Virginia University (WVU). The diagnosis and recommendation to begin Radicava was so swift from WVU that I suggested he get a 2nd opinion. We had the 2nd opinion at the Cleveland Clinic last week, and they want to re-run the EMG and...