2nd EMG today and my weakness has progressed so much since the last test and with the other tests I've had that he agrees with the other neuro and is sure I have Motor Neuron Disease (ALS) :-(
He's going to get me the drug Rilutek...guess I have nothing to lose by taking it.
The diagnosis is...
My first post here so please be gentle with me! I hope I don't regret coming on here. This certainly looks an active forum unlike others I've seen so I am hoping for some support here.
Here is my history up to where I am at today>>>
6 months ago at 53 and overweight...105kgs and I am 5 foot 10...
I know we're supposed to see the positive, but some days, it's just so hard...
I feel like we're living a good news/bad news bad joke-
My husband's condition continues to deteriorate. Up until now, what was being "experienced" as weakness and decline in function, wasn't really...
I finally got my 2nd EMG today and it showed abnormality in my forearm and triceps (bicep and hand was fine) in my left arm. My first EMG, which was conducted three weeks ago was perfectly normal (shows how subjective this whole thing is). Well anyways, the neuro said that he is leaning...
Almost 3 month has passed since the 1st test. Now we flew to Brisbane again, for the 2nd time to see the specialist for another EMG. He was supposed to get a lumbar puncture as well, but as you guys explained it's really not fun, so the doctor agreed to wait.
He was in for about 1hr...
After 3 months of really bad twitching in my calfs, i had an EMG in december and was told i am ok, (i have later found out that the minor abnormalities were the slow nerve test they do at first)
I am due to see my Neuro on Monday and was going there with the hope of getting this fear...
2nd EMG slight change, saliva, swallowing and speech issues - prepare for ALS diagnosed?
I think the doctors are trying to prepare us for a DX of ALS though they say there are still two options, myasthenia gravis, and certain myopathies.
My husband started having swallowing problems three...
I went back for my 2nd emg in 3 months. The first one was clean. Since then I've had fasciculations in my left hand (on the side under my pinkie) and noticed some in my left calf and left foot (side and bottom). At my 2nd neuro appointment I expressed more concern for ALS. My neuro didn't...
I have a 2nd EMG tomorrow. The last time I had one (3 months ago) my neurologist said it was 'fine' and left it at that. I'm having more fascics now. My questions would be:
1) Would BFS show up on an EMG? I had a brisk reflexes last time but no atrophy/weakness. Does the EMG differentiate...
I can't help but notice the amount of people posting who ultimately end up reassured that they don't have ALS. After Thursday, when I have my 2nd EMG in 3 months (upon my request) I hope to be one of them. I'm 26 and I've actually become quite close with another poster who is 25 who also...