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  1. Twinsmom

    Blehhhhhh

    Hi everyone, I've been hiding the last several months-I go through periods where I just want to pretend everything is 'all better'. You all continue to be in my prayers. While Bucky is STILL not with a more definitive diagnosis than MND, the doctor has now stated he thinks Bucky has PMA. The...
  2. Twinsmom

    14 Months of Tests...Diagnosis?!?

    Hi everyone! Well, we are finishing up a 4 day stay at the Washington, DC VAMC "WRIISC" (War Related Illness & Injury Study Center). In Melodyland, we were going to leave here with a very clear diagnosis of some treatable condition that was caused by some "THING" from his military service...
  3. Twinsmom

    Bucket List Activity Accomplished!

    Had an absolutely AMAZING day with my husband. One of his "list" activities was to go sky diving. So...for his birthday this year, I bought US both a skydiving experience. It was exhilarating, petrifying, exciting... Gave him/US an incredible day together!
  4. Twinsmom

    What's up with the FaceBook symbols?

    Does anyone know why we have facebook icons on some of the posts now?
  5. Twinsmom

    Chase Community Giving Campaign for ALSGA

    Chase Bank is running a campaign on Facebook that will be awarding 5 MILLION dollars to charities throughout the country. * One charity will receive $250k * 4 runners-up will receive $100k * 195 others will receive $20k We all know the miraculous, loving work that ALSGA does to our PALS...
  6. Twinsmom

    Anyone heard from JennBenn

    Hi all, Has anyone heard how JennBenn is holding up? She and her family continue to be in my prayers. Melody
  7. Twinsmom

    Happy Passover

    To all my Jewish Friends- I know Passover is ending, but I was out of town last weekend, and didn't have my laptop so.....Happy Passover Peace & Blessings, Melody
  8. Twinsmom

    A long and FRUSTRATING Road!

    I know we're supposed to see the positive, but some days, it's just so hard... I feel like we're living a good news/bad news bad joke- bad news My husband's condition continues to deteriorate. Up until now, what was being "experienced" as weakness and decline in function, wasn't really...
  9. Twinsmom

    Trying to set up album

    When I try to upload pictures to create an album, I keep getting a message saying upload failed...:cry::? Any help out there!?
  10. Twinsmom

    When will we KNOW?

    This past summer, my husband was "verbally" diagnosed with ALS. The diagnosis came out of the blue, being referred to the neurologist by a pulmonologist who noticed his "fasciculations" in his calves-which he's had for over a year. Cramps had gotten worse, but we didn't really think it was...
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