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  • Users: CindyM
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  1. C

    If not now, when?

    This is for everyone who feels frantic about their symptoms, or questions if they have the right to ask for help. It is just a bit of my own philosophy, so take it for what it is worth. It may help, or it may not, but I started thinking about this years ago when we were on vacation in Canada...
  2. C

    LOL Lorie, you made my day!

    Here is what happened: I woke up today feeling strong. Didn’t even get worn out by simple things like taking a shower or pouring my coffee. So I decided to have one morning where I would take a break from worrying about my symptoms, latest tests, or even all my beloved CALS and PALS on this...
  3. C

    Having a REALLY bad day...

    Hello friends. Thank goodness for you all. I had 2 rotten things happened to me today and I am not a happy camper tonight! First of all, I saw a local pulmonary doc this morning because the results of my Pulmonary function test picked up "mild" trouble expelling air. The Doc said that, IHP...
  4. C

    Happy Mother's day

    To all our PALS and CALS on this board: Happy Mother's Day! :-D I know most of our CALS will not get the day off they deserve but I hope you get as much of a break as possible on your day! Cindy
  5. C

    My turn for a question

    I have a quick question for anyone who has experienced this. My trunk muscles are weak and I tremble visibly quite often. People ask me if I am chilly, lol. I was wondering if anyone has some tips for alleviating this trembling. I’ve thought of a back brace…I do not have as much trouble when...
  6. C

    How long will this go on

    Hi Jakk- I don't have much advice but I am sure some of our long-time CALS will. I do have a couple of questions. First, from what other PALS say around here, she might actually perk up and need less medication if she used the pipap during the day. Too bad this is a hard "sell" for her...
  7. C

    Stories of hope

    MomofTwo Thanks to this great suggestion, David has created this special section for PALS who are living full and valient lives, with courage and serenity. If you know of someone who deserves to be recognized for their own story of hope, please post it here! Cindy
  8. C

    From Midnight: Study seeks participants

    Hello everybody, Midnight sent me this information to share:
  9. C

    Exaustion

    I don't know if there is help for what is going on with me lately. I cannot seem to get enough sleep. I am just too tired to move most of the time. I stay in bed all weekend and sleep during my lunch breaks and go to bed the minute I get home. I expect to lose weight soon because, given a...
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