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hope Hi Cindy, sorry for not getting your diagnosed as of yet. I went thru the same thing cindy, and thru all the testing and waiting and being told that i may have a.l.s for the last year. I found out in Jan that my diagnosed was changed to spinocerebellar ataxia. No cure, No treatment, and...

HI there, I have not been here for a while. After all of the tests, for A.L.S. I was just informed yesterday by Dr. Michael Strong at the A.L.S. CLINIC in London,Ontario that i do not have this dreadful disease, but i still have a disease called spinalcerrebellar ataxia. It is a fatal disease as...

Hi there, haven't been here for a few weeks. I have finally been to London, University Hospital, and have met Dr.Michael Strong on Oct 17, and it was a trying day as many of u people know. Lots of questions, muscle and strength tests, and reflex tests. My wife and I were told that in his...

Good Morning, just had some thoughts on my mind. One of them is taking pills, with water.......I say thank GOD for t-shirts.......they r also great if a sneeze sneaks up on u ...........thank GOD for t-shirts..........Maybe I should enter a wet t-shirt contest.......I would win hands down...

I've been hooked on ice cream for quite a while......butterscotch.....but also have a craving for chocolate cream pies..........I mean the whole pie.......LOL............as one of the threads says.........keep up the weight and enjoy while we can...........this is not the time to be thinking of...

retire I would go for the retirement, I will be doing that today or tomorrow, handing in my sickness and accident papers.........and my disibility papers........and my retirement request, which I am going to fast track thru my union.............Its one of the toughest decisions that I have had...

HI there again, had a couple of bad days last week, but I seem to be back inline. I sometimes cannot understand why I go into this deep anger, and I keep on fighting back which seems so difficult.........but somehow get back which is good for my family. My two boys now know what is going on, and...

HI there, didn't sleep well, even with a sleeping pill.........body aches off and on at night. But, anyway, I sit here looking out the picture window staring at the lawn. I used to always get out every weekend and cut the lawn and related duties. sit back. kick back some beers and relax. How I...

supplements Hi there again........and thank u for the kind thoughts.........have a question. I would like to know what kind of supplements that I could take.....neuro said to eat mushy kind of food for now, shepherd pie, pastas, soft foods, puddings and such , but what about...

Hi there, I'm new at this, and I've been reading the threads on here......great support group of people. I'm here because of A.L.S. Seen the neurologist 4 times...gone for all the emgs,mri's, nose and throat specialist. So far, negative , except for spurs on spine, but neuro says I've been...