July 31 my MIL Barb started her new journey. ALS took her body but never took her spirit. Barb fought hard and never let this monster overrule her life. She was a beautiful soul from the first day I met her and until the end. I must tell you I think she picked her own day to start her new...
Just wanted to give you all an update on my MIL. She had a very nice 2 week visit with her sister and brother in law. They took care of her while we worked but we saw a hugh progression in her right hand and arm and her left leg while they were here. We were surprised that they noticed. We...
Hi all, I am sitting here with my husband and he isn't dealing with things so well right now and he told me he doesn't understand how I get on this website. Things are getting worse with his mom. I explained how much help you all have been. So I am posting this question for him. He wants to...
My MIL has a sore bottom from sitting. She has a cushion that she use that has a cut out for the tailbone but it really isn't helping anymore. I was just wondering if any of you all have a cushion that you use and really like. She sits all the time on her couch and her bottom doesn't get a...
Well, my MIL had clinic today and it went terrible. They told her this was the end stage because of her breathing. I am truly lost. We all know this day comes but we are never ready. Barb (MIL) has had several bad days. She can no longer suction by herself and it frightens me when she has to...
I need to vent and this will tell all. With everything going on at home and family showing their true colors let me just say this. I expected this to happen but my husband didn't and it has truly hurt him. This is my view on FAMILY the way I see it at home and the way I feel about it.
F--...
We live in a 3 story home which my MIL lives on 1st floor back part of house. She has bulbar onset and cannot speak at all. We solved the problem if we weren't in the room with her if she needed us by getting a battery operated doorbell that she just pushed the button that you would attach to...
We have clinic appointment tomorrow. MIL is have Botox shoots for the saliva, I really hope this works. Also, there have been hugh changes since the last appointment. We are at the point where she shouldn't be alone and her insurance don't cover inhome care unless it is thru Hospice and that...
My MIL gets her cough assist on Monday. She has been struggling for quite awhile and finally decided it was time. I am so happy. I really hope it makes a difference for her. I know it is extremely hard to hear her struggle but to be in her shoes. She is such a strong person. She just lost...