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  1. J

    Alternative md in NC

    has anyone been to an alternative medicine doctor in North Carolina that they liked and feel helped them? If not in NC, anyone that has can you share your thoughts on the experience and if you feel like it was worthwhile. -Judie
  2. J

    Diaphragm fasic?

    Hi all- well, I continue to slide, and and now feel like i have internal twitches, especially in my diaphragm area. Is it possible to feel this? Theres not much left to lose- I can hold my head up, but my right arm, which allows me to write and type, is going quickly. Thats all there is...
  3. J

    Bi-Pap FVC score

    How low can your breathing number go and have the bi-pap still be effective? Last time I went to Wake Forest clinic(about 3 weeks ago) my FVC was 26% and am still using the bi-pap but can go 6-7 hours without it if I am out. I use nasal pads some of the time but feel that they leak, so I use...
  4. J

    iPod touch with TEXT?

    Hi-I am in need of a speaking device and heard something about an iTouch that could help me out...does anyone know anything about this or could you recommend a great speaking device? My loaner Dynavox is very hard to understand and if Im going to purchase one, i want it to be a good one. What...
  5. J

    Diaphragm pain?

    I have been waking up with bad pain in my diaphragm and my doc told me to increase my bipap use when this happens(keep it on after I wake up). I was diagnosed in May with limb onset but is moving quickly to affect my breathing/speaking. Using the bipap doesn't do much to help the pain. If...
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