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has anyone been to an alternative medicine doctor in North Carolina that they liked and feel helped them? If not in NC, anyone that has can you share your thoughts on the experience and if you feel like it was worthwhile. -Judie

Hi all- well, I continue to slide, and and now feel like i have internal twitches, especially in my diaphragm area. Is it possible to feel this? Theres not much left to lose- I can hold my head up, but my right arm, which allows me to write and type, is going quickly. Thats all there is...

Are many experiencing extreme tiredness from pollen and sinus? Or is it ALS? I've started sleeping 2 hours a day. I never did that before. And I'm not intersted in going out, or am too tired to. Any input?

How low can your breathing number go and have the bi-pap still be effective? Last time I went to Wake Forest clinic(about 3 weeks ago) my FVC was 26% and am still using the bi-pap but can go 6-7 hours without it if I am out. I use nasal pads some of the time but feel that they leak, so I use...

My FVC is 26, and I'm on the bi-pap a lot, I was just given a new one. I also have pain in my chest area and heaviness. How are you?

Hi, my name is Judie Matulis. About a week ago, I really got breathless, had to stay on a bi-pap for at least 20hrs/day. Now, a week later, I have trouble getting a whole word out, and breathing is faster. Has anyone ever experienced this? and if so, what happened? I only have use of one arm...

I hope you are running next year, you just might be, let's pray for that. What a gift you are at als. You have a woderful wife, blessings, judie

Hi-I am in need of a speaking device and heard something about an iTouch that could help me out...does anyone know anything about this or could you recommend a great speaking device? My loaner Dynavox is very hard to understand and if Im going to purchase one, i want it to be a good one. What...

Hi Beth, I read it through...the whole thing, and I'm so sorry for your situation...I'm learning quickly that ALS is has a mind of its own. I was diagnosed in May and walked into my appt with a walker and just got my power chair delivered this week- at 61 years young. Hang in there... Judie

such a good feeling I have read so many indearing notes to people on this site. I think that one could live by this forum alone if it were possible. I am leaving my home soon to go live near my children and my freinds are coming over like it is my wake. I have lived this life of rare disease...