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Run countries I agree - What a group of incredible people! if we were allowed to run countries, the world would be a very different place. You are all amaizing, wise, loving and very very strong. Thank you for coming here and writting. For me reading your messages helps to open my heart. Have a...

The guilt hits hard if I lose patience or during those times where I wish that this was over. I wish it for him but also for myself. I think lots of people feel that way but don't want to admit it, because it feels terrible to admit. Human nature really kicks in during a crisis, doesn't it...

Hello Linda Dear Linda, I hear your concerns and fears. I am really sorry you have to move, I hope you will find a lovely new home for you and your family with no steeps! ALS is a horrible monster, it takes our loves one away and changes our lives. I also know that I am a better person, more...

By the way - if the boy in the picture is your son - he is adorable. I always smile when I see his picture! Sunny:)

Children Hello, I was breastfeeding every two hours while taking care of my husband. Not easy! but It was wonderful that I had the year off for maternity leave so we can be together. I felt it was great to have time to be with each other. We looked for help everywhere we could find it! It must...

It is nice to hear and read about all of you again. I was out of the country with my son for a 4 week holiday visiting my family. It was nice and relaxing, also very sad. I missed Daniel every second of the trip. It was almost two years ago that Daniel died and I still think about him every day...

Books and CDs I like this idea! As well, I love E. Tolle and the "Power of Now". I also really like his CDs, "Even the Sun will Die" it is a wonderful spiritual interview with Tolle where he speaks about consciousness and being free from form. I also study with a group "A course in Miracles"...

Hello Buf, I lost my husband to ALS and I know how you feel. It is very difficult, I also have a hard time sleeping. There are some books that helped me a lot, like "we do not die". I am also part of a support group because I found I needed to talk to people that were going trough the same...

In March of 1993 Daniel died, but in those 14 years Daniel taught our family how to live and appreciate the moments we have together. Now that my husband has ALS, we focus on what he can do and find ways to celebrate each day we have together. Granted we have stumbled many times over the last...

the grieving process and kids My son was only 15 months old when his dad died. I had a really hard time finding help, even books, about how small children grieve or how to help them. After Daniel died, my son stop talking, it is only now, almost a year latter, that he started to make an effort...