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SOme interesting ideas here. My mom was diagnosed at age 50 and she was a little bit of a thing. About 5 feet tall and 9o lbs. As I had said she lived for 16 years, most of which she was able to walk, talk etc. The last 3 years or so she went downhill rapidly. SHe also had a negative attitude so...

Just to let you know that my mother lived for 16 years with ALS. At the beginning it progressed quite quickly and then she basically stayed the same for about 13 years and the last 2 years were steady downhill. She never was placed on bi-pap or anything and the day the dr. suggested the feeding...

Holly i feel for you and can hear your pain in your e-mail. this damn als thing is so cruel and so very hard to watch. life sure doesn't bring you what you think eh? my first husband died 13 years ago(not als) and i was left with 6 children ages 3-12. i was very angry for a long time. then my...

i was wondering about carol as well. i must say i have enjjoyed reading her posts as she is so supportive and kind and articulate. i hope she is coping okay. i am very new to this site but already feel as if i am getting to know some people. i remember all of the rush trips to the hospital...

You have offered so many people on this forum so much support. may the lord be with You now as You struggle with the newest difficulties You are facing. You are obviously a very strong lady and and are surrounded by terrific people. we will all pray for You!

you are amazing! Mike...I have to say how amazing you are to have such a great outlook on your life. I highly doubt you are a burden at all to those who love you. I too live in Calgary and I would imagine you are hooked up with the ALS clinic here. They are awesome people there! Good luck Mike...

I have no idea how Stephen Hawkings has lived for so long but I can tell you that my mother lived for 16 years with ALS. Her neurologist told us this happens about 10% of the time. Once she was diagnosised she stayed the same for about 10 years and then began to rapidly fail. She also has a very...

I know how alone and how overwhelming this can all be. My mother passed away 5 years ago and I cared for her for 2 years. It is very draining. Just want you to know we are out here for you and that this is a safe place to vent. I just recently joined on but have been very impressed by the...

Just found this site for the first time. I want you all to know that I understand what everyone is going through as I lost my mother to ALS 5 years ago. If there is any support I can provide I would be happy to do so. I wish I would have found this 5 years ago when I needed it. God Bless you all!