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Hey Chally! Great work on the calendar. Tom was so surprised when it came in the mail today. It's a beautiful project. We appreciate you, Beth, and Deva so much! Sending love to all of you and thank you!

The annual clothing allowance is due in to the prosthetics department of the VA the veteran receives their prosthetics from no later than August 1. Our VBA sends us a letter each year giving us a heads up on this. The veteran can receive a clothing allowance for each qualifying device or...

This article really spoke to me. Maybe it will others. How to Recognize Signs of Anticipatory Grief

Respite care is one way to take care of ourselves as caregivers. It gives us a little relief so we can do things like visit with friends and family, go shopping, or go sit somewhere and do nothing if that is what we choose. It is not specific for caregivers of a PALS, but we can benefit, as well...

From AARP: "Support and Pass the RAISE Family Caregivers Act (S. 1719/H.R. 3099) Senators Susan Collins (R-ME) and Tammy Baldwin (D-WI) and Representatives Gregg Harper (R-MS) and Cathy Castor (D-FL) introduced the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act...

Caregivers of veterans with ALS are welcome to join a community of military/veteran caregivers. The Elizabeth Dole Foundation was created to assist and support military/veteran caregivers. "Our nation’s military caregivers need and deserve robust, effective support in light of the mental...

A clip of a documentary of one of the longest living persons with ALS

The 5 Stages of Grief and Other Lies That Don't Help Anyone The stages of grief were developed by Elisabeth Kubler-Ross over 30 years ago, as she listened to and observed people living with terminal diagnoses. Since the publication of her book On Death and Dying, the "stages of grief," as they...

To help veterans with ALS and their caregivers navigate the complex VA system and benefits I created a Facebook page. It is an opportunity to share valuable insights in a supportive atmosphere. I love this forum and read it daily. Sharing the link here in case there are some vets and their...

I've read Bo Stern's blog for a few months now. I like reading it. It reads well, like she is talking to the reader. Bo's blogs strike home, often, and this last one in particular struck many chords...