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  • Users: miss91
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  1. M

    Update - For The Undiagnosed

    Hi Everyone! I have been wanting to post on here for a long time and I am just going to do it! This post is intended for the individuals looking for an answer and who have NOT been diagnosed with ALS by a doctor. Over 2 years ago I experienced some very disturbing symptoms that ultimately...
    • miss91
    • Thread
    • atrophy back clinic desperation diagnose diagnosed fear foot heart hours life neurologist rant symptoms twitches twitching undiagnosed update wanted website work
    • Replies: 2
    • Forum: Could this be ALS?
  2. M

    Where To Go Now?

    Hi everyone. I'm posting again because since my July 27 Mayo visit, I have gotten worse. Mayo saw me just 2 months into symptoms. I had blood tests, and an EMG on just one side of my body (the "worse" side). I was told no ALS, no MND, etc. However, I did not get answers for my issues...
    • miss91
    • Thread
    • 2nd opinion advice als atrophy atrophy;mayo;emg back cramps emg foot hope mnd money problems progression symptoms tests wanted
    • Replies: 1
    • Forum: Could this be ALS?
  3. M

    Jamiet?

    Does anyone know what happened to Jamiet? Did he get a diagnosed? I see his last post said he had a neuro appt. and then no info after that...........
  4. M

    Update - Mayo

    So - spent the last 2 days at Mayo. Many blood tests were done, as well as emg/nc tests and clinicals. First day, dr. said my reflexes were all normal, maybe even a little reduced in the arms. Not hyper at all. He couldn't see any big atrophy differences. Yesterday's Emg was done on my...
    • miss91
    • Thread
    • atrophy back early emg foot mayo;atrophy;foot; emg motor neuron disease muscle night oxygen problems scared sleep tests thumb update wanted worried
    • Replies: 11
    • Forum: Could this be ALS?
  5. M

    Update

    Hi everyone, I did go in and see my neuro today regarding all my rude symptoms. I let him know my weakness has greatly increased and I'm having a lot of pain in the atrophied foot. He did a quick check of reflexes (said they were ok, yet my feet did nothing with the Babinksi AS usual), said...
    • miss91
    • Thread
    • back breathing clinic dad emg foot health mayo; atrophy; muscle pain symptoms update urgent wanted weakness work
    • Replies: 5
    • Forum: Could this be ALS?
  6. M

    Help - What To Do?

    Hi everyone. Just very frustrated here. My symptoms are rapidly progressing and I feel like I can't get in to see anyone or get any help at all. In the last week alone it's become painful walking on my atrophied foot, and I noticed my right arm has become incredibly weak. This morning, I...
    • miss91
    • Thread
    • als als clinics arm atrophy atrophy;weakness;emg back breathing clinics desperation early emg foot frustrated help! night please help please help me shaking symptoms weakness
    • Replies: 25
    • Forum: Could this be ALS?
  7. M

    EMG Results & Atrophy

    HI Everyone, I had my EMG last week. Since I've last posted, my fasciculations have continued and my right foot/ankle and especially right hand have REALLY started to atrophy. My hand/wrist look like Skeletor with the tendons/bones sticking out, and there are little dips in the wrist. Also...
    • miss91
    • Thread
    • ankle arm atrophy bulbar cell clinic clinical cramping early emg emg results fasciculations foot media medicare medicine muscles neurologist pain reading sensitivity swallowing symptoms tongue tongue fasciculations wrist wrong
    • Replies: 10
    • Forum: Could this be ALS?
  8. M

    My Heart Is Hurting

    Hi Everyone, I posted the other day with some of my symptoms and fears of ALS. Again, I am so impressed with everyone dealing with ALS on this website, and the caregivers, and your ability to "go on" in spite of what is happening. Basically, I'm just scared. I mentioned some of my symptoms...
    • miss91
    • Thread
    • ability als atrophy back caregivers christian crying decline emg exhaustion fasciculations fatigue fingers foot grinder heart kids life lump muscle nausea neurologist night pain ring finger scared sleep symptoms twitch vent voice wanted website weight loss
    • Replies: 38
    • Forum: Could this be ALS?
  9. M

    Symptoms Indicative of ALS. And I'm 36.

    Hi Everyone, I'm so scared to post on here because it makes my symptoms "real". Until one month ago, I was a healthy 36 year old married mom of three boys. Suddenly, I felt sick one day and had diarrhea and just an overall "fatigue", nausea, ill feeling. I lost 9 lbs. in about 2 weeks. I was...
    • miss91
    • Thread
    • afterward als arm brain depressed exhaustion fasciculations fatigue fingers lump mri muscle muscle fatigue muscles nausea scared scared of als swallowing symptoms tests tremor wanted
    • Replies: 6
    • Forum: Could this be ALS?
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