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    Does ALS hurt?

    Thanks for responding. I'm hoping to get some answers at the end of the month (although this is a new doctor so maybe it will just be a meet and greet). The pain was the first thing to start, both in my arm and in my legs but they peoceeded symptoms by maybe a year then stopped in their...
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    Is Iplex any good?

    Thank you for the information! I saw some threads after I posted. I have to confess I'm technology stunted. I wasn't sure how to google concerns on the forum. I should be living on an Amish farm somewhere....then I wouldn't feel so computer illiterate
  3. P

    Does ALS hurt?

    Hi, I've posted before but while I'm awaiting my next neuro visit I was wondering if anyone knows if it's possible to have muscle soreness for lengths of time. I have read conflicting things on when muscles hurt so any info. would be appreciated. I have left hand and arm weakness and left leg...
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    Is Iplex any good?

    I'm wondering if anyone has heard of or is using Iplex? I only know alittle about it and that it may not be readily available but I don't know what area neurologists are thinking or if it's even promising? Thanks:?
  5. P

    How long for diagnosis?

    I'ts a little reassuring to hear that I'm not the only one who is taking a little longer to get some answers. I guess it is the system and I'll have to figure out a way till diagnosis not to get too frustrated. Hopefully, if nothing else, next doctor will be a little more giving of...
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    How long for diagnosis?

    Thanks for that encouragement! She is a neurologist in a small town so I thought her referring me to Madison was a big move, but I found out the neurologist she is referring me to is another general neurologist. Again, my confidence in this doctor is waning. Why do you think the lateral...
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    How long for diagnosis?

    Thanks Lydia, I guess I'll request a copy from the original neuro. It will give me something to do while I await the next appointment. I'm trying not to be impatient. I don't know if there are tests I should be requesting to help rule things out for peace of mind. I have thus far been...
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    How long for diagnosis?

    Thanks, I was going to ask the Madison office for a copy. I just don't know that I want to deal anymore with the doctor or her office. At the last visit the doctor told me if the spinal was clean she was going to refer me. Fine, I accept that, but when the receptionist calls to tell me it's...
  9. P

    How long for diagnosis?

    Hi, I've been seeing a neurologist for initially a weak left hand/arm then it progressed to weak foot and leg and now it's been close to two years. At first when I initially showed her my tremor (pressing a finger against a wall) she told me after a clean emg that I had tremors. Next scheduled...
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