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None. If you are suffering from upper motor neuron degradation you can experience cramps (that is pain) and muscle stiffness (is that pain?). So, if you are somewhat far along in ALS you might call the muscle fatigue pain. Maybe. Surely the cramps. But a big zero is called for with respect...

What are "blackies"?

Thank you for your compliment, Diane. And I can surely the same about you! I will be filing my disability claim on Friday as my very understanding neuro agrees that the time is right. She is puzzled by the vocal cord atrophy--she says it is not to be expected in an exclusively UMN...

It is very difficult to find just the right kind of information. For the most part, you either get a very watered-down explanation or get launched into a journal for neurologists clouded by nomenclature. From what I gather, the lowers and uppers are quite near one another in the bulbar area...

Hello Diane, Your path is quite similar to mine. I started with hoarse voice and loss of projection. It was an ENT who told me to go and see a neurologist. Unlike your case, he opted out of the vocal cord EMG because, he said, "we already know your vocal cord is atrophied". But he did do a...

"but I must ask how messed up is my thinking here? " IMHO, incredibly so. Fercryinoutloud--go see a doctor for a diagnosis! Not to do so is just inane. Good luck...

Tom, You can't diagnose this thing yourself or from the internet. Some of your symptoms do not fit the model of ALS but do fit into other categories of MND. But there are always exceptions to every general rule. You could even have more than one malady at the same time. You have enough MND...

To all, When we speak to one another in person, our eyes and our smiles complete the communication picture. Words lacking emotional content may be accepted as helpful when the eyes are twinkling and lips are curled into a knowing smile. We don't have that add-on when offering our thoughts in...

Lou, This question is a good one, I think. We all must realize that it is essential to get solid objective opinions from people who are trained and experienced with MND. Suddenly, something odd is going on with your muscles and you are staring at parts of your body you never paid much...

I go to Drexel/Hahnemann too. Do you see Dr Heiman-Patterson there? I am very pleased with the way they run things.