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Just Checking In I have been thinking about you and wondered how things are going. I finally went to the forum yesterday and wrote a little about Dennis. I procrastinated doing it as I found it a little depressing whenever I would read about a PALS that had passed. I decided that I really...

Just wanted to let everyone know that Dennis went home to to be with Jesus on Christmas Day. He had developed blood clots around his lungs. He was 51 years old and had never been in the hospital before. He was everything to the kids and me and touched so many lives. We miss him terribly, but...

My husband suffered severe muscle cramping and the twitching also occured before his atrophy was evident to me. He still has a lot of twitching which stress and fatigue seems to be definite triggers. He is happiest when he stays busy and keeps his mind off of it. We use a vibrating pad and that...

Xanax Hi Shannonme....Ditto on the xanax. It works great for hubby and when he sleeps I get to sleep too :) He has also taken one during the day lately to relax when he has been stressed. He says he thinks it might even help his twitching sometimes. I know he "twitches" more when he is feeling...

Diagnosed May 2006 Yes, I too hope we will continue to get responses to this thread. My husband was diagnosed with limb onset May 2006 at the age of 50. We think his symptoms could have started as far back as 4-5 years with severe muscle cramping occuring throughout his body, but most...

Sorry to hear you are having such a hard time. Your Dad is very fortunate to have you and your sisters to care for him as long as you can. Is he on any thing to help him sleep? My hubby takes xanax .5mg ( the lowest dose available ) an hour before bedtime and it helps immensely. It is available...

Paula, I am so excited for you. I can just picture the joy on your face. It is always great to hear happy stories. My husband doesn't quite need a wheel chair yet, but has to pick and choose what he uses his steps for each day as he wears out easily. He doesn't even want to discuss a wheel chair...

2nd Opinion We also did the second opinion thing. Yes I would personnaly advise you to schedule it now. We did our 2nd opinion at a Mayo Clinic. Go on-line and find the one nearest you and make your 1st contact via e-mail. At least the one in Rochester, MN was good to deal w/for us. I had tried...

Sleep Hi Rhonda. My husband also has trouble sleeping and takes a xanax about an hour before bedtime. He takes the lowest dose available and it works well for him. It is really important that you get the best rest you can each night so you might ask your doctor about it. My mother-in-law is in...

Muscle Twitching and Cramping My husband has had severe muscle cramping everywhere from his neck and sides to his arms and legs. These have been happening for a couple of years. As for the muscles twitching, he does feel them and sometimes they are more severe than others. They occur mostly in...