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I haven't been outside in almost a year... I am afraid I'll have to pee or that I'll fall etc. I have actually come to the point I am afraid to go outside. When I do leave the house.. for Doctor's appointments and whatnot we have to call a rescue to transport. I live on the 2nd floor with...

Does anyone know why the FDA terminated the clinical trial for Thalidomide? :confused:

Has anyone had any experience with throat spasms? The other night when I was in bed my throat cramped up and I couldn't breathe for a second until it went away. Naturally, I kind of freaked a bit. Has anyone had any experience with this issue :confused: ? If, so do you have any suggestions...

I just wanted to say hello and welcome all the new PALS. I haven't been on awhile. I recently moved to Florida so I haven't been online as much up until now. Anyway, HI :)

I am building a non profit web site in order to raise ALS Awareness and as a reference guide for PALS and their loved ones. I would appreciate any suggestions from anyone. I want this web site to be a good reference point for people. Please check it out and let me know if you are willing to...

I have just recently started feeling a tightening feeling in my left cheek and chin. Tonight my left cheek is numb and I have a pins and needles feeling that goes from my left cheek to my lip and a little under it. Has anyone ever experienced this feeling before? If so, what is it? :confused...

Hi. I am new to the forums here. I have been avoiding support groups out of fear. I feel like this little online community is a God send. Reading and posting makes me feel like I am not alone and I want to thank everyone that has made that possible. Here is my story: At 22 I was working at a...

Hi My name is Holly. I am 24 years old and was diagnosed with ALS 2 years ago. I am getting married next year to a wonderful man. ALS is not an easy disease. I was just wondering if anyone had any suggestions or tips to make life easier for him at home. Thanks, Holly