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  1. handinhand

    my mom, linda

    Hi ! this is jen, Linda's daughter. It's been almost a whole year since my mom passed away from als. I miss her so much. it's almost harder now. I was so happy that she wasn't suffering anymore. It was almost a relief. But now when I think of my mom, I think of her before she got sick. She...
  2. handinhand

    Peg tube ...what now?

    I have a question? At the end of the tube where you close it ,my the little end that you push in to stop the flow is breaking ? Has this happened to anyone and can they just put a new end on the tube? Hope I am making sense? Need help before it totally breaks off? Thanks Linda
  3. handinhand

    Linda fell

    This is Jen, Linda's daughter. My dad and her came to visit yesterday. When they got here, she fell coming up my porch. She tripped on the stair and came down hard on her face. My dad and I were right there but not close enough. Her top front teeth went through her bottom lip. My husband is a...
  4. handinhand

    Progressing ...

    :sad:Hi , I have been going along thinking that with bulbar onset, that I would be gone way before I would need any of the equipment that folks starting with limb onset need...today I have realized that I am losing the use of my arms and hands.....pondering on what to do now? No arms..no making...
  5. handinhand

    Great smoothie

    Banana cut up,6strawberries,handful of blueberries,6ice cubes, 4scoops of orange sherbet,pomp juice. Put in blender... Ummmmmmm good... Dinner tonight .made enough for rich some too ..:D
  6. handinhand

    Like new lightwriter

    Hi, Linda here, I have like new speech device..the light writer. I have used it very little. It is a new one only used by me.. It cost 7000. Is anyone Interested in it for 2000. Thanks for your consideration .. reason selling it is because I need other equipment ...
  7. handinhand

    Shoulder pain

    I have mentioned about how fast I am progressing with my left hand and arm...now that I can't raise up my arm high,when I do with the help of my right arm..my shoulder hurts real bad.. Is this typical ? I am wondering ? Should I keep trying to move my arm up high even though it hurts? To keep...
  8. handinhand

    Left ear not hearing right

    I am having the strangest thing going on with my left ear for a week or so now..I can't hear out of it very well and it feels like when you go up high in the mountains and it won't pop but much worse and stays for a long time. It will just come on and no matter what I do it won't go away... Have...
  9. handinhand

    So tired and sad

    I think this has been one of my hardest days ever...I have never felt so tired.just no energy at all. Everything makes me sad ...just real depressed..can't seem to get a grip tonight.maybe I shouldn't be putting this on the forum sight? Sorry... Going to take sleeping pill and hope I am much...
  10. handinhand

    Please slow down

    Today has been an interesting one...lots of new symptoms this past few weeks. More twitches going on in different places...as I am sitting here,I am having them all over my rib cage...at first I thought they felt like when I was pg with my babies...the kinda rolling sensation.. Nope can't be...
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