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Hello all - has anyone heard of, or tried this supplement?

Hi Jan, Not having any trouble (except for occasional fluid down windpipe I think) with liquids right now. I waas eating some soup for lunch the other day, fairly light soup with barley or rice or something small in it - that didn't seem to want to go down well. Tonigh my throat seems sore -...

Hi Hi Jan, Hang in there! Sorry you need to be here. I CAN relate. 51, 1st neuro visits in April - no denervation at that time. Funny, 'dead' feeling in arms. Pain in arms from weak muscles overtaxing stronger ones. Numb feelings. Fasciculations increasing in mumber. Swallowing...

Retire I also would retire if I had the option. I am self-employed and have no safety net whatsoever. You only get one shot a life, whether you have als or not. You may survive quite a bit longer not working. It may require other tough choices along the way but in my opinion - I would go...

Hi Sara, You are so young to have to worry about such matters. I am really sorry you need to be here. I empathize with your situation - whatever you decide to do - I pray that you don't get it. I am not yet diagnosed and have two of my own children (daughter 25 and son 24 soon) and a...

Hi Bubba, I've got signs also, but not yet diagnosed. I saw something on a fairly official ALS site that stated that the 'average' time from onset of symptoms to a definitive diagnosis of ALS was 2 years. Keep in mind that there are lots of different things that can explain symptoms, and it...

grateful Thank you Al and Tracy for your responses. I am grateful for them. My Naturopath made no claim that he could cure me. ** links removed** Part of the problem I suppose is that I have tried a whole bunch of things instead of one at a time. Anyways, I will continue the chelation...

Did I mention that I can type faster than I think! Before anyone begins to get upset, please understand the victim comments are all about me, nobody else ....

Tracy I have not been diagnosed (3rd EMG in 2 months) . I do have escalating symptoms, IE fasciculations, some throat issues but no choking as yet, muscle weakness particularly in thumbs, wasting. When I 1st went to my naturopath, he said that it can usually be cured, if caught early...

exercise continued Thanks Al, So will any muscle tissue develop? I had a frozen shoulder about a year ago and started seeing a physio for that, and it is now pretty much resolved. After that I saw her for neck (since related to shoulder), then arms (the neuro at the ALS clinic said I might...